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Did you know Van Gogh had epilepsy?
Irises" by Vincent Van Gogh |
EPGP-EPILEPSY PHENOME/GENOME PROJECTThe Epilepsy Phenome Genome Project (www.epgp.org) is the largest research study ever created to identify genes that influence epilepsy and genes that affect an individual's response to seizure medications. The National Institutes of Health is partnering with major epilepsy centers around the country to collect detailed information on 5,250 individuals over five years. The goal is to understand what causes epilepsy, which treatment will be effective, and why some families have multiple relatives with seizures. Participation involves a blood draw and interviews. Numerous safeguards are in place to protect the privacy of participants. Participants will receive a small compensation for their time, and can participate through the phone and mail from anywhere in the U.S. EPGP is looking for two types of participants: 1) People who have been diagnosed with epilepsy, and also have a brother, sister, parent, or child with epilepsy. 2) People who have been diagnosed with one of several types of rare epilepsy and both biological parents are willing to participate. These types of epilepsies include seizures due to: Infantile Spasms, Lennnox-Gastaut Syndrome, Polymicrogyria, or Periventricular Nodular Heterotopia. If you would like more information about the project please contact: Website: www.epgp.org E-mail: info@epgp.org Toll-free Phone: 1-888-279-3747
EPILEPSY FOUNDATION ALABAMA CAMPCamp Name: Camp Evoked Potential @ Camp ASCCA, Dates of Camp: July 4-9, 2010, Session 1, Ages of Children: 6-18, Cost: $675, Camperships available. Contact information: David A. Toenes, Director Client and Employment Services, 1-251-341-0170 or 1-800-626-1582, dtoenes@efala.org Brief description of camp: 2009 was an exciting year at Camp ASCCA. Opened in 1976, located on Lake Martin off Highway 280 between Dadeville and Alexander City, Camp ASCCA is the worlds largest year round, barrier free camp for people with disabilities. Camp Evoked Potential @ Camp ASCCA is for children and teenagers, ages 6-18, with epilepsy. It's a great opportunity for kids to experience the fun of camp activities-swimming, fishing, sports, hiking and more-all to be designed to be accessible and adapted to campers' individual needs and abilities, all in a safe, medically monitored setting. The cost is $675, scholarships are available for qualified individuals, based on availability and financial need. Contact David Toenes at 1-800-626- 1582 or e-mail: dtoenes@efala.org If you would like to make a donation to camp call 251-341-0170 or 1-800-626-1582. National Walk for EpilepsyI am asking all my friends and contacts to join me by making a donation or joining a team to fight epilepsy. Our National Walk for epilepsy will be held March 27, 2010 in Washington DC. All funds raised by our team or donations made on my personal page will stay in Alabama to support the Epilepsy Foundation of Alabama so essential services can be given to people with epilepsy and their family members throughout Alabama. Please click on the on the "Support Frank" or "Join Frank's Team link below to insure that funds raised stay in Alabama. To make a donation online, visit my personal page. Thanking you in advance for your support so that someday "not another moment will ever be lost to seizures in Alabama." Contact Frank Mitchell Garrett, Executive Director, Epilepsy Foundation of Alabama, Phone number (251) 341-0170 or 1-800-626-1582, e-mail mgarrett@efala.org.
THE MISSION
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