I have a photosensitivity trigger. I was diagnosed about a year ago, and I'm going to be a sophmore. Grand mal seizures, all that jazz
I'm sorry, people say that the medicine will help you live a normal life, that just makes me so...angry.
I live in a super suburb. And I mean I just feel like screaming, Normal really docs? I can't go see concerts, nor 3d movies, I can never watch the movie rent,I can't watch black and white movies in general.and I had to leave my first ever homecoming. That was devasting. I dropped 19 pounds too. Is any of that normal?
And then comes the guilt. Do I really deserve to be angry over this, when they're are people out there who have worse neruological disorders then me?

So what's your story? Does any one out there have a photosensitive trigger too?

Hi my name is stephanie and I don't have a photosensitive trigger but I know what you mean about social life.I'm going to be a high school freshman and I'm going to try to hide my epilepsy.I have no idea what kind of seizures I have.They happen when I'm sleeping only if I don't take my medication.I've been irresponsible with my medication until 2 nights ago when I thought I was having a seizure and yet it was my phone vibrating because a guy I really like was calling me.I didn't notice it was a phone call till I was going back to my bed but,when I got to my phone it said "missed call".He left the sweetest message but,I didn't dare to call back because he was going to work the next morning.I just sometimes feel like I'm too cool for medication,uhmm I was wrong.

Hi, my name Katie. I was diagnosed with E. just this year back in March. I think that it is OK that you are angry, sometimes I am too. I have triggers to flashing lights and stuff like that, I don't know if that counts as photosensitive or not...it is definitely not as severe as yours is with you not being able to watch black and white movies. It is hard having E. and being in school or around other people. There are certainly difficulties...1) Now I have to be super careful about being alone or anything of that nature that might effect me having a seizure and not having help 2) People don't always understand. For example, when my school was still in session we did a light lab in science that involved doing things with light bulbs and lamps and ray boxes. There was this really rude kid at my table that kept on turning the light on and off constantly. I can get a headache which can trigger my seizures or the light itself could automatically trigger it. I asked him to quit but he wouldn't. There are people out there in the world that are just like that. But anyway then my friend who was also my partner told him to quit but he still wouldn't. So we just skipped that part of the lab and went to another part of the room to do the next section. Well my first mistake was not saying that I couldn't do this lab at all. But I thought that I would be fine. While we working on the next part I could still see that light out of the corner of my eye and I broke down because I was afraid of what might happen. I started crying and my hands were shaking. Sometimes before I have a seizure or when I am nervous my hands shake. My teacher told me she was sorry a million times and I told her that it wasn't her fault at all. I still hold a bit of a grudge at him for not quitting. But the funny part was the next day he tried to apologize and he was acting all rude and he thought it was funny. How can people be like that? This is serious... I bet if it was him in that position, he would be totally different.

Edited: 08/15/2009 at 11:14 PM by KT_French_Horn_Player

Hi, my name is Kate, im kinda new. i know exactly what your talking about though. i just came home from a firework show in my town and had two siezures within 30 minutes. i have petit mal or absence but i still feel like crap. trunabout was hard i never faced the stage and ended up going in the other gym to play basketball because my headace was so bad. and feeling angry is normal. ive had this for 13 years, i dont know any other way of life besides medicine and my limitations which have grown increasingly over the years since i was diagnosed. ive almost had to quit basketball but i threw a fit in the docs office and instead he upped my dosage so i can keep on playing. and your right your never really normal even on meds. you know your not so its imprinted in your brain. and sadly it never really leaves.

My biggest triggers are flashing lights and lack of sleep. My mom and I were watching the daytime emmys last night and there flashing lights on tv and i had a HUGE tonic clonic seizure. My parents said that it was the most violent one they have seen me have. My other triggers are heat, spinning around, watching things spin and vibrations.