http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=87116 2009-08-29T21:00:29 -05.00 jenny2044 2 HOWEVER, they have been a constant problem because they are not controlled completely by medicine. I have never driven a care, which at this point i'm just used to.
But now it is just causing a bigger, more emotional problem. I am 22 and engaged. I have been engaged for a year and would have gotten married the day after he asked me. I have no doubt that this is who i will spend the rest of my life with. He supports me, and the epilepsy, 100%. However, I do not receive benefits in my job (i'm a m*****age therapist) and he is in the process of law school so he does not have health insurance. I am currently still on my mothers health insurance and CAN be until i'm 25 as long as i am in school the whole time.

This sounds well and good and honestly i know i should be thankful that i'm doing as well as i am....but I am SO frustrated and getting depressed at the fact that i cant be married. We live together but i want to be married. If we were to have kids, i would want to be married. I want to be married NOW and i feel like the world (or god) is against me with this. I'm also afraid (because of statistics and such) that the longer we are engaged the worse our marriage will be. I feel like we are missing out on the "honeymoon" stage and even once we can get married it just wont be like everyone else gets to experience. i'm really upset by this and just want to know if anyone else has experienced a similar situation?]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=87065 2009-08-20T11:35:18 -05.00 zoey 1
In Jan of this year i had a grandmal seizure that left me on life spport for 3 days. I generally have complex partials with 3 grand mals so far. At this point we did not even have insurance so the dr's i saw in the hospital and at the follow up appt at clininc were not even familiar with me. I just this week got in to see a neuro as a follow up to my eizure in Jan.

So i finally after 10 years met a Dr who explained why my Complex partial seizures are so hard to treat! Ready for this??? Because they are so COMPLEX! I had to laugh, Then she went on to tell me how my meds that i have been on for 6 years caused my grandmal seizure that left me on life support for 3 days. A few knocks here and there about my Kaiser dr and then she told me she couldnt help me. She doesnt have the vns machine so she couldnt amp up my machine. In fact this neuro who my insurance made me wait 6 months to see and drive 150 miles out of town to see her, Doesnt usually deal with epilepsy.

OK so i get there are epilepsy specilists I really do, And i could accept that fact if she wasnt so darn rude and degrading and knocking my Kaiser dr who was a specilist!

Now i am back to waiting for another referel that will take me 500 miles out of town to see a specilist. There are good and bads to that though i might finally meet a dr who can help amp my machine as well as give me an additional med.

It just gets so frustrating and all i can think about is how much i want my dr back and my kaiser where i knew who to call and had a dr who was always familiar with me. I know why i had the seizure the amount of stress i was under was amazing not just every day things or even about money but i had just finished a court trial in which i was found guilty and my future was unlcear. Infact the dr i saw in the ER said "im sure you expected this right? so you add it all together amazing amount of stress, no sleep and you know what you get when you have epilepsy.

Now im still at about 10 complex partials a week and i am losing my mind. between my husband being misreable in his job (but at least he has one) 4 kids to raise and my job i just dont know how much more stress i can take.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=87029 2009-08-01T20:52:27 -05.00 smiejaa 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86988 2009-06-21T00:08:11 -05.00 icepuck68 1
When I got home I began to look more into it and began reading of all the possible side effects. I began to really rethink this surgery when I saw all of this.

I live in the largest city in the country that doesn't have public transportation. At the age of 40, I still have to rely on everybody around me almost everyday. This is very stressful and embarr*****ing having to ask for a ride almost daily. Add on top things like you getting a call from your father on Christmas Eve saying both of your Brothers still have all of their shopping to do and won't be able to come get you for that night's family party. Your ride for work not showing up................................. it's things like this that are making it more stressful.

Something at my job has recently occurred to many of us that even pushed me to rethink the idea of possibly having the surgery.

Yet, even looking into it again the possible side effects still scares the you know what out of me. After all of the medications I've gone through I don't have the best memory now. I'm simply afraid that possible memory loss and verbal problems could be held against me at my job.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86982 2009-06-17T22:27:44 -05.00 xcmp 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86978 2009-06-16T15:38:16 -05.00 whiteexse05 1
I gained over 40lbs...most with lamictal and from my divorce. I need to know (obviously work out too) but is there a diet pill safe enough to help me?

I used to work at Stacker2 and had a seizure off the ephedra before it was banned....so didn't know if there is something else. I want natural if out there.

let me know what you guys do to lose weight.

thanks
Jocelyn.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86968 2009-06-09T04:45:15 -05.00 Ghebre 1 LETTER OF RECOGNITION, APPRICIATON & RECOMMEMNDATION,

KFC Inc.,
P.O. Box 725489
Atlanta, GA 31139
Customer Service,
U.S. - 1-800-225-5532

Dear Management & Customer Services,

Having vacation from California to Washington, DC, I visited one of your delightful restaurants located at,

1394 14th St. NW,
Store #Y351001
Washington DC
(202)319-8688

Pleased & impressed with the cheerful warm reception & eager approach of the KFC cashier, your employee, Mr. DeAndre Williams, I ordered my entrees, planning to have a healthy dinner & a pleasant evening.
But, as soon as I ordered my entrees, paid for my meal & while I was waiting to pick up my order, I GOT STRUCK WITH GRAND MAL SEIZURE.
(FYI: I'm epileptic & on medication since 1999).
In my case, after each grand Mal seizure, I fall hard to the floor & my whole body shakes violently, messing up anything around me & hurting myself more with more injury by colliding against the tables, chairs, walls, cemented wales, hard floor & anything on my way. After the physical movement is over, it would be very diffult to regain my conciousness, thefore, for hours, I fall in to deep sleep at the same site of the seizure.
After I was picked up by ambulance from KFC & driven to Washington's Howard University Hospital, I regained my consciousness, thanks to your employee who called the ambulance.
When my EVERY DAY heroes, the fire fighters, ambulance drivers & emergency technicians took me to the hospital ER, they informed me, that , if it was not for the employees of KFC, protecting my life & very important personal property (a luggage, a lap top, a wallet), a lot of things could have gone wrong.
Besides saving my life & my property, your outstanding employees told the Ambulance driver that I could have the meal I ordered the next morning, as soon as I felt better, therefore, they saved my dinner TOO,,, for the next morning.

Dear KFC Management & Customer Services,
While I'm still in emergency room hospital bed, nursing multiple injuries from my seizure, hearing the kindness of your employees from the fire fighters, Ambulance driver & emergency technician, MY HEART WAS & STILL IS TOUCHED & I cried & cried & cried, at your employees concern for my well being & other customers.
After over night stay at the hospital & enough rest at home, to express my appreciation, today,,, I went to the same KFC location I had the grand Mal seizure & I was welcomed back like a hero & enjoyed the meal I missed for seizure 24hrs ago.
THE GOOD WILL OF YOUR EMPLOYEES HELPED RESTORE MY WELL BEING, MY CONFIDENCE IN THE GOODNESS OF MANKIND,
Thank you!
Please foreword my appreciation to your employees, Mr. DeAndre Howard, Mrs. Kimberly Howard & the rest of the crew at the location, Store #Y351001.
Thank you,


Dear KFC Management & Customer Services,
Your devoted, dedicated & hardworking employees represent the great management style & customer service of your corporation.
Therefore, I commend your employees & urge the the KFC Management to recognize, reward, promote & foreword my appreciation to Mr. DeAndre Howard, Mrs. Kimberly Howard & the rest of the crew at the location, Store #Y351001.
Thank you,

Sincerely,
Your Delighted Customer,
Gerrie]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86953 2009-06-02T06:19:45 -05.00 sandra.thomas3@sky.com 1
just want to ask some advice if these are/were seizures

1. top lip twitching-this can go on and of for a few minutes, then it will stop but sometimes it may start to myclonice jerk?

2. index finger twitch-again this can go on, then stop?

3. toe twitching?

4. then this was an odd one for me my husband was in the kitchen came back to find my mouth wide open, and me staring and my eyes wide open and my eyes shaking from side to side, this went one for a good few mins, thought I was out of it went into kitchen to help with tea and my eyes lost focus, so husband helped me to chair and then ramdomly my lips twitching, arms jerking and then finally whole body jerked and that was that?

5. I have had an eeg to see if i am photsentive, but this has came back normal, but when i watched britians got talent, it set me off!

just when you think you get use to your seizure pattern new ones crop up is this normal? I am waiting for a diagnosis of epilepsy, had and eeg done a few weeks ago, currently been diagnosed with NEAD, but am on tegretol which has stopped me from having TC but not the PS and neuro wants to wait for results of eeg before changing meds.

sandra]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86944 2009-05-26T15:50:20 -05.00 kenny782 1 I'm getting plenty of denials of course.

I'm trying to find some organizations I might be able to get in on for group coverage. I work in IT.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=11&threadid=86873 2009-04-18T01:44:18 -05.00 littleharp24 3