http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=87041 2009-08-11T19:09:14 -05.00 bobchevelle 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86892 2009-04-28T21:27:49 -05.00 babybear1000 2 ???- Has anyone else experienced this themselves or with their spouse? If so, how did you help?? He is currently on Depakote 500mg twice per day. In all honesty I wonder if there is not another issue here that is undiagnosed. Perhaps bi-polar or depression??? I've tried talking to him about this but he is in denial about the mood issues. I can't really blame him for being defensive, I guess I could really use some advice from someone whose been there.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86809 2009-03-25T12:42:08 -05.00 wsus2006 3 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86787 2009-03-24T12:00:32 -05.00 szymanski 1
Because of all the requests from so many eCommunities members - and because the Epilepsy Foundation eCommunities are so very important to so very many people, we here at the Foundation have searched high and low for a new system that might give all our eCommunities constituents the ability to once again share photos and links - and, for the first time ever, also share videos, blogs and other material!

You might have heard something about the change to the new and improved system over the past several months, because we've been working on it for quite a long time.

The new site (which can be accessed by www.epilepsyfoundation.org/ecommunities, along with several of the other front and side eCommunity links you've used over the past few years), which you must register for (your current eCommunities profile will not move over - we are NOT migrating accounts over), is live now. If you've always wanted to have a new name, now's the chance to change it!

The old site will be available until at least Thursday, 3/26/09. After that, it will become read-only, which means you will be able to copy messages from those forums for a while. Once the old site goes to read-only you will no longer be able to access your private messages (PMs), so you copy any of those you wish to keep as soon as you possibly can.

If you have any questions or concerns about the site, you should (1) ping the EF moderator, (2) contact me, (3) post your question in the Announcements/FAQ forum: http://epilepsyfoundation.ning.com/forum/topics/2217546:Topic:1621. You should check out the FAQ and User Guide as soon as you've created your new account so that you can familiarize yourself with the new system and learn more about all that you'll be able to do with it. By checking these areas first, you'll probably figure out most of your questions for yourself pretty quickly and easily, since a lot of us think the site is pretty intuitive.

Because of the issues we've had in the past about pictures, we're using an approval system for photos and videos with the new forums. What this means is that you can't directly post photos or videos to the site. You'll post them, we'll approve them (unless there is a problem with them), and then they'll go up. We don't know how long this system will continue for, since it depends on whether or not we have any problems with folks trying to post inappropriate material. I know everyone is eager to start posting photos again, and I'm hoping this system will make everyone happier, since your photos and videos should eventually make it up onto the site.

We are very excited about this new site launch, and I'm really hoping this new site will alleviate and solve problems with downtime, log-in errors and other problems. This new site is a full-featured, robust, social networking platform that will allow users to upload messages, photos and videos, as well as keep blogs and do all sorts of other nifty things.

I hope everyone finds the new eCommunities as fun and exciting as me and the rest of our team here at the Foundation do - now just hop on over to the new area and create your new identity before the online name you really, really want gets taken!

Therese
Moderator ]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86770 2009-03-23T15:27:37 -05.00 jul9678 2 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86729 2009-03-21T10:49:26 -05.00 wsus2006 4 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86728 2009-03-21T10:39:07 -05.00 wsus2006 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86401 2009-03-08T19:01:07 -05.00 hemibrian 2 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86280 2009-03-03T06:42:39 -05.00 southie 3 Some sites to check out for help with medication cost:


http://www.needymeds.com

https://www.pparx.org/PreQual.php


Patient Assistance Programs For Seizure Medications

ATIVAN

Wyeth Pharmaceutical Assistance Foundation - 1-800-568-9938

CARBATROL

Roberts Pharmaceuticals (Shire US Patient Assistance Program) - 1-908-203-0657

DEPAKOTE

Abbott Laboratories - 1-800-222-6885

DIAMOX

Wyeth Pharmaceutical Assistance Foundation - 1-800-568-9938

DIASTAT

Xcel Patient Assistant Program - 1-908-850-9902

DILANTIN

Pfizer, Inc. - 1-800-707-8990

FELBATOL

Medpointe Pharmaceuticals - 1-800-678-4657

GABITRAL

Gabitral Assistance Program - 1-800-511-2120

KEPPRA

UCB Pharmaceuticals, Inc. - 1-800-477-7877 x 7

KLONOPIN

Roche Labs - 1-800-285-4484

LAMICTAL

GlaxoSmithKline Bridges To Access - 1-866-728-4368

MYSOLINE

Xcel Patient Assistant Program - 1-908-850-9902

NEURONTIN

Pfizer, Inc. (Connection To Care) - 1-800-707-8990

PHENYTEK

Bertek Pharmaceuticals, Inc. - 1-888-823-7835

TEGRETOL, TEGRETOL XR

Novartis Patient Assistance Program - 1-800-277-2254

TOPAMAX

Ortho McNeil Pharmaceutical - 1-800-577-3788

TRILEPTAL

Novartis Patient Assistance Program - 1-800-277-2254

ZARONTIN

Pfizer, Inc. (Connection To Care) - 1-800-707-8990

ZONEGRAN

Elan Medical Needs Program - 1-866-347-3185]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=21&threadid=86274 2009-03-03T02:01:17 -05.00 mike_00 8
My niece would be very scared but she's ten, so we could explain things to her. Not that it would make it any better for her to see one, but at least she would understand what's happening. My god-daughter on the other hand is a different story. She's only three, and she would _absolutely_freak_out_. I'm very close to both of them and would feel horrible to see them once I snap to.

Have any of you been in this situation? How would/do you prepare the little ones you love for something like this? Cause unless these are magically controlled over night, its bound to happen at some point. I've thought about talking to my niece about it at some point and will work the details out with mom and dad. Any suggestions or experiences you could share would be great.]]>