http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=87039 2009-08-10T07:56:21 -05.00 magnbdl 1

Liv Tyler says she unwinds by going to spas for a full body scrub and[url=http://www.m*****age-in-ningbo.net.cn]m*****age in ningbo[/url]and feels "happy" after the session.

Contactmusic.com reports that the actress regularly visits Korean bathhouse Beverly Hot Springs in Los Angeles for an all-over body scrub and m*****age in ningbo and enjoys being naked in the bathhouse.

"The most unlikely place you will find me is naked at the Beverly Hot Springs. It is a traditional Korean bathhouse where you soak in natural hot springs and get scrubbed, ningbo m*****age and cleansed to within an inch of your life. They even wash your hair. You feel clean and happy afterwards."

Liv, who has a four-year-old son, Milo, with her estranged husband Royston Langdon, also revealed that her friends come to her for relationship advice because she has heartbreak experience.

"I'm a good problem solver. I go with my gut instinct on[url=http://www.m*****age-in-ningbo.net.cn]m*****age in ningbo[/url] things. For the past year though, I've been reading self-help m*****age in ningbo books. I've been through a really hard time in my life and have needed other people's wisdom to help me feel okay," said the 32-year-old. msgdafz]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=86856 2009-04-10T14:03:55 -05.00 efennell 1
We have been holding out hope that time, plus surgery or the ketogenic diet could provide some relief from seizures and therefore a chance for her brain to heal and move on some.

We have pushed and pushed for a diagnosis, treatment and prognosis. Well the verdict is in, she a gene mutation specifically: CDKL5.

The spectrum of CDKL5 disorders includes:INFANTILE SPASMS, WEST SYNDROME, EARLY-ONSET INTRACTABLE EPILEPSY,LENNOX GASTAUT SYNDROME, ATYPICAL RETT SYNDROME [HANEFELD VARIANT], AUTISM.

file:///C:/DOCUME~1/Ed/LOCALS~1/Temp/www.cdkl5.com-6.htm

An Australian group is taking the lead in research on this disorder. We have registered Haley in their study and they werekind enough to immediately call my daughter and were very supportive. At this point there is no cure.

Ed Fennell
West Sand Lake, NY]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=86790 2009-03-24T12:06:59 -05.00 szymanski 1
Because of all the requests from so many eCommunities members - and because the Epilepsy Foundation eCommunities are so very important to so very many people, we here at the Foundation have searched high and low for a new system that might give all our eCommunities constituents the ability to once again share photos and links - and, for the first time ever, also share videos, blogs and other material!

You might have heard something about the change to the new and improved system over the past several months, because we've been working on it for quite a long time.

The new site (which can be accessed by www.epilepsyfoundation.org/ecommunities, along with several of the other front and side eCommunity links you've used over the past few years), which you must register for (your current eCommunities profile will not move over - we are NOT migrating accounts over), is live now. If you've always wanted to have a new name, now's the chance to change it!

The old site will be available until at least Thursday, 3/26/09. After that, it will become read-only, which means you will be able to copy messages from those forums for a while. Once the old site goes to read-only you will no longer be able to access your private messages (PMs), so you copy any of those you wish to keep as soon as you possibly can.

If you have any questions or concerns about the site, you should (1) ping the EF moderator, (2) contact me, (3) post your question in the Announcements/FAQ forum: http://epilepsyfoundation.ning.com/forum/topics/2217546:Topic:1621. You should check out the FAQ and User Guide as soon as you've created your new account so that you can familiarize yourself with the new system and learn more about all that you'll be able to do with it. By checking these areas first, you'll probably figure out most of your questions for yourself pretty quickly and easily, since a lot of us think the site is pretty intuitive.

Because of the issues we've had in the past about pictures, we're using an approval system for photos and videos with the new forums. What this means is that you can't directly post photos or videos to the site. You'll post them, we'll approve them (unless there is a problem with them), and then they'll go up. We don't know how long this system will continue for, since it depends on whether or not we have any problems with folks trying to post inappropriate material. I know everyone is eager to start posting photos again, and I'm hoping this system will make everyone happier, since your photos and videos should eventually make it up onto the site.

We are very excited about this new site launch, and I'm really hoping this new site will alleviate and solve problems with downtime, log-in errors and other problems. This new site is a full-featured, robust, social networking platform that will allow users to upload messages, photos and videos, as well as keep blogs and do all sorts of other nifty things.

I hope everyone finds the new eCommunities as fun and exciting as me and the rest of our team here at the Foundation do - now just hop on over to the new area and create your new identity before the online name you really, really want gets taken!

Therese
Moderator ]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=85353 2009-01-30T03:10:04 -05.00 cmscribbles 1 szymanski (epilepsy foundation staff) can't make paragraphs :( which makes her post more difficult to read she asked me to post threads about this. So, I'm just going to copy and paste what she put in her thread in the lounge... with paragraph breaks.

it's worth a repeat anyhow...

from szymanski:
I cannot stress this enough -- there are scam artists on our forums now, and right now I can't ban them (technical reasons). Anyway, please know that you should NEVER give money to anyone you find here, or give any personal information out. ALWAYS BE VERY, VERY careful.

This is one version of the message that's going around. Please feel free to pass this warning along (feel free to put it on all the forums, all rules about not posting a single message everywhere doesn't apply to this, because this is very, VERY important):


phishing spam message recently sent to several forum users:
(minus the contact info which I deleted)

Greetings in Jesus name, My name is Mrs.Roselyne Caron ; I am a dying woman who has decided to donate what I have to you/church. I am 59 years old and I was diagnosed for cancer for about 2 years ago immediately after the death of my husband who has left me everything he worked for and for the fact that the doctors told me I will not last longer than some months because of my health,I decided to WILL / donate the sum of (Euros4.500 000) Four million Five hundred thousand Euros to you / church for the good work of humanity and also to help the motherless and less privilege ones and also for the *****istance of the widows in like manner. I wish you the best and may the good Lord bless you abundantly and add more days to your life. Please use the funds well and always extend the good work to others Here is the Contact information of my Attorney below: [...] And tell him that I have WILLED (Euros4 500 000.00) Four million five hundred thousand Euros to you and I have also notified him. I know I don't know you but I have been directed to do this. Thanks and God bless you. NB: I will appreciate your utmost confidentiality in this matter until the task is accomplished as i don't want anything that will jeopardize my last wish. From Please call the lawyer immediately you send message because is always busy to check up the mail . Mrs.Roselyne Caron]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=85259 2009-01-27T21:28:47 -05.00 MomDelia 1 DELIA'S DANCE Saturday, March 7 2009 Rochambeau Club, 329 South Street, Biddeford, Me 7:00 pm-12:00am A great night of dancing and raffles. 21 and over only! Tickets are 1 for $12 or 2 for $20 All proceeds to benefit the Epilepsy Foundation that help programs here in Maine! If you are interested in tickets than please email me at teeny1978@gmail.com. Hope to see you there]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=85195 2009-01-26T15:03:38 -05.00 GreatShakes 7
I know that nobody does. I realize that I sound, perhaps, a bit whiny or scared or whatever, but that's because I am. I invite any and all advice, education, anecdote, smack in the face, sob story, success story... I am at square one and just want to get off to the best start that I can.

My ears and eyes are open.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=84948 2009-01-18T20:03:56 -05.00 gabismom 10 Thanks]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=84469 2009-01-02T13:51:32 -05.00 checht37 1
My sister started becoming ill in early college when she sufferred from severe anemia. They found her red cells were abnormlly shaped but ruled out numerous diseases. She then started running low-grade fevers and having low WBC counts. Also with history of sores in her mouth, history of joint pain. Began having seizures 5 years or so after all other symptoms. Now has been having seizures 15 years or so and grand mal has become quite bad. Last seizure three weeks ago resulted in hypoxic brain injury. She is now going home having to use a walker, must wear eye patch due to double vision, has left sided weakness, and many other issues.

If we don't find out what is causing this, it is going to kill her. Does anyone have any insight into something like this? My younger brother also has had seizures, but only 3 grand mal, no other symptoms, and has been seizure free for over 10 years or so.

Any thoughts?

checht37]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=84400 2008-12-30T13:28:49 -05.00 udoubledown11 5 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=22&threadid=84357 2008-12-28T19:02:40 -05.00 PatyFor 2 But her history takes to have faith that she has that syndrome in spite of the father and me not to have historical of epilepsy nor of feverish convulsions. She worsened with Tegretol and Lamictal... it got better with the Dieta Cetogênica and it is until today.... I did until a site on the diet... www.episer.com.brwww.episer.com.br.
She would like to know exists already some vaccine or some "cure" for such devastating syndome...

Today it uses Ketogenic Diet and Rivotril. Their crises got better (it arrived to twenty a day - widespread, partial, mioclonia and absences) but of 15 in 15 days she has fever or her temperature goes up provoking crises.
Did the doctor ask to change of Rivotril for Topamax...

am I apprehensive because it will be that Topamax and the ketogenic diet combine?

Thanks and sorry my english...

Patricia Castro]]>