http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87119 2009-08-30T23:41:58 -05.00 mike2390 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87118 2009-08-30T22:57:39 -05.00 mike2390 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87115 2009-08-28T16:18:03 -05.00 mike2390 1


thanks,
Mike]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87098 2009-08-26T22:44:25 -05.00 Karizmaluvx3 3 I wanna freaking breakdown and like run away from it all. All I have is my fansite with people who actually care, this site, and 2 friends.


im sorry about that. i just needed to rant. i know my life wont be the same but
do you feel like no ones listening or caring?]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87089 2009-08-25T21:55:19 -05.00 NKteacher 1

ex:


The last thing I remember is I go on the computer and feeling as if my brain jumped from inside my head. Then I wake up without any memory of going to sleep and I see my parents standing over me and that's when I know that I had another seizure. That and my tongue killing majorly...lol]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87073 2009-08-22T21:34:11 -05.00 purple23 5
im get it done soon and i want to know what your experience has been like.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87054 2009-08-17T13:13:59 -05.00 camels 2
I grew up with epilepsy and at 16 I had brain surgery to remove the part of the brain affected. In the past I have done a ton of volunteering for Epilepsy organizations and raised over $5000 which was donated to the cause.

Currently I am 25 and am in the midst of writing a one-woman play revolving around living with epilepsy. I am planning to do an international tour with this next summer, hitting NYC, Toronto, London, and Edinbrough.

I would like to have your input! If you had the chance to expose to the world what life with epilepsy is really like - what is the main message you would want to get across? What would you say? Anything goes and everything is confidential. I am using what people are willing to tell me as inspiration only.

please email me at epilepsystories@gmail.com or you may reply to this post directly if you would prefer.

Thanks and I look forward to hearing from you!!]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87053 2009-08-15T21:23:17 -05.00 rockingeorgiagirl 2 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87051 2009-08-14T21:38:35 -05.00 jrose 5 I'm sorry, people say that the medicine will help you live a normal life, that just makes me so...angry.
I live in a super suburb. And I mean I just feel like screaming, Normal really docs? I can't go see concerts, nor 3d movies, I can never watch the movie rent,I can't watch black and white movies in general.and I had to leave my first ever homecoming. That was devasting. I dropped 19 pounds too. Is any of that normal?
And then comes the guilt. Do I really deserve to be angry over this, when they're are people out there who have worse neruological disorders then me?

So what's your story? Does any one out there have a photosensitive trigger too?]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=5&threadid=87045 2009-08-13T14:40:11 -05.00 blondsmtk368 2