http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86846 2009-04-02T20:44:17 -05.00 abc_123 9
A week ago I had a seizure and I went back to work this week. I'm back on meds, and I can't drive for 6 months. With family members working, I have to ask my co-workers to take me to and from work. Taking me to work isn't the problem, it's taking me home!! When I ask, they say, "Go ask someone else they live right close". It's like nobody wants to help me out!! All the ones I'm asking live close to me! And not only that, I'm being treated differently. The ones I'm very close to hardly speak to me anymore, let alone look at me! They whisper to each other and I know they're talking about me because they look right at me!! It's like they're turning their backs to me. I haven't done anything wrong, only I've been very quiet because of the way I've been feeling after my seizure, I'm sure ya'll know what I'm talking about. It's so damn frustrating it makes me cry! I'm still able to do the tasks I've always done, maybe a little slower than I used to be.

Has anyone been in this position? What the heck should I do? I'm thinking about going to my HR and talk to her about my issues (she said that she'll help if I have any problems). I'm almost at the point where I don't want to go to work because of all this mess. Anybody, please help!!!

~Apryl]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86792 2009-03-24T15:35:09 -05.00 szymanski 1
Because of all the requests from so many eCommunities members - and because the Epilepsy Foundation eCommunities are so very important to so very many people, we here at the Foundation have searched high and low for a new system that might give all our eCommunities constituents the ability to once again share photos and links - and, for the first time ever, also share videos, blogs and other material!

You might have heard something about the change to the new and improved system over the past several months, because we've been working on it for quite a long time.

The new site (which can be accessed by www.epilepsyfoundation.org/ecommunities, along with several of the other front and side eCommunity links you've used over the past few years), which you must register for (your current eCommunities profile will not move over - we are NOT migrating accounts over), is live now. If you've always wanted to have a new name, now's the chance to change it!

The old site will be available until at least Thursday, 3/26/09. After that, it will become read-only, which means you will be able to copy messages from those forums for a while. Once the old site goes to read-only you will no longer be able to access your private messages (PMs), so you copy any of those you wish to keep as soon as you possibly can.

If you have any questions or concerns about the site, you should (1) ping the EF moderator, (2) contact me, (3) post your question in the Announcements/FAQ forum: http://epilepsyfoundation.ning.com/forum/topics/2217546:Topic:1621. You should check out the FAQ and User Guide as soon as you've created your new account so that you can familiarize yourself with the new system and learn more about all that you'll be able to do with it. By checking these areas first, you'll probably figure out most of your questions for yourself pretty quickly and easily, since a lot of us think the site is pretty intuitive.

Because of the issues we've had in the past about pictures, we're using an approval system for photos and videos with the new forums. What this means is that you can't directly post photos or videos to the site. You'll post them, we'll approve them (unless there is a problem with them), and then they'll go up. We don't know how long this system will continue for, since it depends on whether or not we have any problems with folks trying to post inappropriate material. I know everyone is eager to start posting photos again, and I'm hoping this system will make everyone happier, since your photos and videos should eventually make it up onto the site.

We are very excited about this new site launch, and I'm really hoping this new site will alleviate and solve problems with downtime, log-in errors and other problems. This new site is a full-featured, robust, social networking platform that will allow users to upload messages, photos and videos, as well as keep blogs and do all sorts of other nifty things.

I hope everyone finds the new eCommunities as fun and exciting as me and the rest of our team here at the Foundation do - now just hop on over to the new area and create your new identity before the online name you really, really want gets taken!

Therese
Moderator ]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86504 2009-03-13T10:30:50 -05.00 wakim82 5 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86476 2009-03-12T09:43:13 -05.00 ebj1209 6
I was just wondering has anyone had a seizure arise from missing a dose. I had an episode on Monday at work, and they actually were frantic on how to handle.

That they called the medics and I was taken to the hospital. The episode was minor it started with Aura which I can predict arising and went into a mild seizure.

Which I am always conscious as to what is happening around me. When the aura arose i just sat on the floor and laid down.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86446 2009-03-10T20:25:55 -05.00 alexiath26003 5 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86287 2009-03-03T10:02:41 -05.00 Polly 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86286 2009-03-03T10:00:33 -05.00 Polly 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=86111 2009-02-24T17:33:06 -05.00 sandra.thomas3@sky.com 2
I began having seziures after the birth of my son in april 08, I was told i had NEAD, and no medication works for NEAD, I was constantly have seizures and being admitted in and out of hospital, in Oct 08, I started to ake tegretol which has reduced the biggy ones, but still having small ones about 1-2 a week.

I am a support worker who works with adults with challenging behaviour and learning disabilities.

I am awating further eegs, and have kept my employers up to date. I met up with my manager and he feels they have helped, and feel they cannot help me no more (which is lies, they have not offered me any support, or offered funding for private help), my work have a m*****ive occupational health team who have now closed my case.

I met upwith my manager a few weeks ago and he has told me that they may end my contract!, as my seizures are not under control yet! can they do this? my sick pay does not end until this june, I am unable to change my medication untill I have the further eegs, and the results, and work are meant to offer me suitable work, i thought?

I am so angry as I have worked for this company for 5 yrs and have always given my all.

I have an offical meeting next week, I have a unuin rep, but what can I do? I don't know if i can be bothered with the stress, I just want to enjoy being a new mum, but then I didnt plan on the possibility of loosing my job from having an illness from giving birth.

ARHHHHHHHHH]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=85919 2009-02-17T16:38:39 -05.00 Gina1978 4
My name is Gina. I am new to this, so you'll have to excuse me. I just realized that I posted this in the wrong section of the forums, so I have decided to repost in hopes of getting some more advice.

I have been working with my current job for almost a year now here in CO. I have been having some issues with my meds (which could be because of the altitude or the low grade meds I am on), that has caused me to have about 6-7 seizures while I have been employed with the company. At one point , they asked for documentation, so I brought two letters from two different doctors. No problem. Both of my bosses knew about my seizures and that was that.

Thursday morning, my boss called to inform me that I no longer had a position within the company. I had almost seen this coming from a mile awhile away because they had been screwing up on my schedule (which caused me to miss a day last week), and my job was continually being threatened for one reason or another. I asked him why he was firing me. He clearly was expecting me to just take what he said and be ok with it because after stuttering over his words for a few minutes, he told me it was because of my absences. I made him aware that 95% of my absences were due to my epilepsy and that he couldn't fire me because of that. His anger got the best of him and after getting into it a bit, he ended up hanging up the phone. Again, making it VERY clear that I had no position within the company.

So I went to pick up my things. Within a 1/2 hour or so of leaving with my things, my "boss" was calling me back claiming that he was not made aware of my seizures and that he had called the corporate office. He said that I was on some sort of personal leave and that I would hear from the office, and he hung up.

After not hearing from corporate, I called them Friday morning and asked for an explanation of what was going on. She said that I was not fired, that I was on "personal leave" and I would be recieving paperwork in the mail that I would have to fill out, have my doctor fill out, and return to the corporate office. My doctor would have to put restrictions in this letter and if the restrictions were able to be met, I would have my job back. Well, I got the letter and not only do they want restrictions that I do not have, they want me to release all medical records to them pertaining to my epilepsy and how it affects my work.

I told her I was confused, because I had already provided these restrictions. I told her my bosses knew full well of my situation and have known the whole time I was employed there. I said I would feel very uncomfortable going back to an environment that would OBVIOUSLY be hostile one because they have been so anxious to get rid of me. I also asked if I could just take the firing (because I could atleast collect the unemployment). She said that was not possible and if they decided that I could return to work, and I didn't wish to, that I would be basically giving up my job.

Do I have some sort of case here? This seems VERY wrong to me, and the people that have given me just the smallest time of day don't even give me a chance to tell my whoel story. How am I supposed to go back to this kind of environment? People are already talking about the fact that I am fired and no one is doing anything to fix it. I feel as though I have been very wronged here. Do I jump through these hoops? Do I release my medical information? Or do I just say forget this terrible part time job and move on to something better? I feel so beagten down...]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=6&threadid=85768 2009-02-13T06:50:58 -05.00 irish2welsh 1