http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=86785 2009-03-24T11:57:07 -05.00 szymanski 1
Because of all the requests from so many eCommunities members - and because the Epilepsy Foundation eCommunities are so very important to so very many people, we here at the Foundation have searched high and low for a new system that might give all our eCommunities constituents the ability to once again share photos and links - and, for the first time ever, also share videos, blogs and other material!

You might have heard something about the change to the new and improved system over the past several months, because we've been working on it for quite a long time.

The new site (which can be accessed by www.epilepsyfoundation.org/ecommunities, along with several of the other front and side eCommunity links you've used over the past few years), which you must register for (your current eCommunities profile will not move over - we are NOT migrating accounts over), is live now. If you've always wanted to have a new name, now's the chance to change it!

The old site will be available until at least Thursday, 3/26/09. After that, it will become read-only, which means you will be able to copy messages from those forums for a while. Once the old site goes to read-only you will no longer be able to access your private messages (PMs), so you copy any of those you wish to keep as soon as you possibly can.

If you have any questions or concerns about the site, you should (1) ping the EF moderator, (2) contact me, (3) post your question in the Announcements/FAQ forum: http://epilepsyfoundation.ning.com/forum/topics/2217546:Topic:1621. You should check out the FAQ and User Guide as soon as you've created your new account so that you can familiarize yourself with the new system and learn more about all that you'll be able to do with it. By checking these areas first, you'll probably figure out most of your questions for yourself pretty quickly and easily, since a lot of us think the site is pretty intuitive.

Because of the issues we've had in the past about pictures, we're using an approval system for photos and videos with the new forums. What this means is that you can't directly post photos or videos to the site. You'll post them, we'll approve them (unless there is a problem with them), and then they'll go up. We don't know how long this system will continue for, since it depends on whether or not we have any problems with folks trying to post inappropriate material. I know everyone is eager to start posting photos again, and I'm hoping this system will make everyone happier, since your photos and videos should eventually make it up onto the site.

We are very excited about this new site launch, and I'm really hoping this new site will alleviate and solve problems with downtime, log-in errors and other problems. This new site is a full-featured, robust, social networking platform that will allow users to upload messages, photos and videos, as well as keep blogs and do all sorts of other nifty things.

I hope everyone finds the new eCommunities as fun and exciting as me and the rest of our team here at the Foundation do - now just hop on over to the new area and create your new identity before the online name you really, really want gets taken!

Therese
Moderator ]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=86692 2009-03-19T22:23:45 -05.00 Shanta31 2 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=86647 2009-03-18T22:54:27 -05.00 Shanta31 4 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=86483 2009-03-12T15:01:50 -05.00 SDMom 2
He is globally delayed, suspected mild CP, autism, totally non-verbal, and has E. He seems to be doing very well on the lamictal, although I do notice more purple lips lately that seem to correspond to seizure stuff. However, he has not had an obvious sz in several months now. (Possibly had one the other morning when he slept in until after 10 AM, where he usually is up between 7-8 AM, but we didn't see it so am not certain there.)

Anyway, I don't want to give up on him. He really seems to notice that his next younger brother is not wearing dipes anymore, using the potty, etc. But it is so very, very frustrating. I honestly don't know if he is able to control those muscles regardless of ability to tell when he has to go.

Has anyone had success with a more involved child?]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=86336 2009-03-05T11:22:20 -05.00 zanesmom 4 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=86026 2009-02-20T21:34:38 -05.00 noahsmommy 2
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mom to 17 month old Noah dx PGE in Nov 07, current meds Topomax, Lemictal, Klonopin, Zonegran, yet still unresponsive]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=85975 2009-02-18T23:15:11 -05.00 mprhie 1
How young is too young to be looked at for OCD? She has a lot of odd quirks that I have been chalking up to toddlerhood. She's just not growing out of them?

I promise I am not trying to self-diagnose I'm just wondering if she is too young yet to ask about it?]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=85947 2009-02-18T09:42:06 -05.00 babs 11
Rachel is drooly and very tired this a.m. Is she even o.k. to go back to school after being home for 5 days because of who knows what? Illness maybe?

She's so hard to get ready in the morning as it is, let alone when she's even more resistent to getting up.

Yanking her one way to get her shirt on. Helping her up, we almost fall over. Next my necklace gets caught in the hair that did not need to be fixed this morning. Well, now it does.

As she sits on the chair lift, she wont (can't?) lean her head back so I can fix it. Yankin' her around to fix the hair. In a stern voice I'm reprimanding my little girl to sit up. Yeah, right. Can she even? Now she's scratching the back of her head, which is impairing the fix. Already late, I am frustrated.

Finally in wheelchair now, but leaning to right side. I can't seem to right her. Late already, no time to put her back brace on. Drool on her shirt, how uncomfortable is that? Run to kitchen for bandana to tie around neck to catch drool. Put coat on, trying to yank it down so it's not a huge wad bundled behind her back in her chair. Can't find her chest strap. Who adjusted straps so I have to readjust them?

Out the front door now, yank wheelchair in rt direction to get on the lift. I can feel my back going and I just want to cry.

5 min late for bus. Blessings to a sweet driver who only asks kindly, "How is she?". All I can manage is a shrug of the shoulders with a mumbled, "I don't know". Say "good bye, love ya Rachey, hope you feel o.k." as her chair raises up into the bus. Turn to walk in the house with huge tears falling down my face". Aching for my baby who can't tell me if she's too sick to go to school and boo hooing from a Mom who doesn't know how much longer she can do this without human help or a portable lift. Which wont fit in her bedroom, and besides would need 2 of b/c we live in a stupid 2 story home.

Going for a walk in the rain now. Tears have dried, but the rain coming down will feel good on this face..........]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=85942 2009-02-18T08:09:59 -05.00 noahsmommy 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=62&threadid=85880 2009-02-16T16:55:57 -05.00 kvanblaricum 5