http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=87108 2009-08-27T14:27:29 -05.00 eppy 2
Thank you,
Eppy]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=86799 2009-03-24T15:48:53 -05.00 szymanski 1
Because of all the requests from so many eCommunities members - and because the Epilepsy Foundation eCommunities are so very important to so very many people, we here at the Foundation have searched high and low for a new system that might give all our eCommunities constituents the ability to once again share photos and links - and, for the first time ever, also share videos, blogs and other material!

You might have heard something about the change to the new and improved system over the past several months, because we've been working on it for quite a long time.

The new site (which can be accessed by www.epilepsyfoundation.org/ecommunities, along with several of the other front and side eCommunity links you've used over the past few years), which you must register for (your current eCommunities profile will not move over - we are NOT migrating accounts over), is live now. If you've always wanted to have a new name, now's the chance to change it!

The old site will be available until at least Thursday, 3/26/09. After that, it will become read-only, which means you will be able to copy messages from those forums for a while. Once the old site goes to read-only you will no longer be able to access your private messages (PMs), so you copy any of those you wish to keep as soon as you possibly can.

If you have any questions or concerns about the site, you should (1) ping the EF moderator, (2) contact me, (3) post your question in the Announcements/FAQ forum: http://epilepsyfoundation.ning.com/forum/topics/2217546:Topic:1621. You should check out the FAQ and User Guide as soon as you've created your new account so that you can familiarize yourself with the new system and learn more about all that you'll be able to do with it. By checking these areas first, you'll probably figure out most of your questions for yourself pretty quickly and easily, since a lot of us think the site is pretty intuitive.

Because of the issues we've had in the past about pictures, we're using an approval system for photos and videos with the new forums. What this means is that you can't directly post photos or videos to the site. You'll post them, we'll approve them (unless there is a problem with them), and then they'll go up. We don't know how long this system will continue for, since it depends on whether or not we have any problems with folks trying to post inappropriate material. I know everyone is eager to start posting photos again, and I'm hoping this system will make everyone happier, since your photos and videos should eventually make it up onto the site.

We are very excited about this new site launch, and I'm really hoping this new site will alleviate and solve problems with downtime, log-in errors and other problems. This new site is a full-featured, robust, social networking platform that will allow users to upload messages, photos and videos, as well as keep blogs and do all sorts of other nifty things.

I hope everyone finds the new eCommunities as fun and exciting as me and the rest of our team here at the Foundation do - now just hop on over to the new area and create your new identity before the online name you really, really want gets taken!

Therese
Moderator ]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=86282 2009-03-03T06:47:08 -05.00 southie 2 Some sites to check out for help with medication cost:


http://www.needymeds.com

https://www.pparx.org/PreQual.php


Patient Assistance Programs For Seizure Medications

ATIVAN

Wyeth Pharmaceutical Assistance Foundation - 1-800-568-9938

CARBATROL

Roberts Pharmaceuticals (Shire US Patient Assistance Program) - 1-908-203-0657

DEPAKOTE

Abbott Laboratories - 1-800-222-6885

DIAMOX

Wyeth Pharmaceutical Assistance Foundation - 1-800-568-9938

DIASTAT

Xcel Patient Assistant Program - 1-908-850-9902

DILANTIN

Pfizer, Inc. - 1-800-707-8990

FELBATOL

Medpointe Pharmaceuticals - 1-800-678-4657

GABITRAL

Gabitral Assistance Program - 1-800-511-2120

KEPPRA

UCB Pharmaceuticals, Inc. - 1-800-477-7877 x 7

KLONOPIN

Roche Labs - 1-800-285-4484

LAMICTAL

GlaxoSmithKline Bridges To Access - 1-866-728-4368

MYSOLINE

Xcel Patient Assistant Program - 1-908-850-9902

NEURONTIN

Pfizer, Inc. (Connection To Care) - 1-800-707-8990

PHENYTEK

Bertek Pharmaceuticals, Inc. - 1-888-823-7835

TEGRETOL, TEGRETOL XR

Novartis Patient Assistance Program - 1-800-277-2254

TOPAMAX

Ortho McNeil Pharmaceutical - 1-800-577-3788

TRILEPTAL

Novartis Patient Assistance Program - 1-800-277-2254

ZARONTIN

Pfizer, Inc. (Connection To Care) - 1-800-707-8990

ZONEGRAN

Elan Medical Needs Program - 1-866-347-3185]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=85347 2009-01-30T03:01:01 -05.00 cmscribbles 1 szymanski (epilepsy foundation staff) can't make paragraphs :( which makes her post more difficult to read she asked me to post threads about this. So, I'm just going to copy and paste what she put in her thread in the lounge... with paragraph breaks.

it's worth a repeat anyhow...

from szymanski:
I cannot stress this enough -- there are scam artists on our forums now, and right now I can't ban them (technical reasons). Anyway, please know that you should NEVER give money to anyone you find here, or give any personal information out. ALWAYS BE VERY, VERY careful.

This is one version of the message that's going around. Please feel free to pass this warning along (feel free to put it on all the forums, all rules about not posting a single message everywhere doesn't apply to this, because this is very, VERY important):


phishing spam message recently sent to several forum users:
(minus the contact info which I deleted)

Greetings in Jesus name, My name is Mrs.Roselyne Caron ; I am a dying woman who has decided to donate what I have to you/church. I am 59 years old and I was diagnosed for cancer for about 2 years ago immediately after the death of my husband who has left me everything he worked for and for the fact that the doctors told me I will not last longer than some months because of my health,I decided to WILL / donate the sum of (Euros4.500 000) Four million Five hundred thousand Euros to you / church for the good work of humanity and also to help the motherless and less privilege ones and also for the *****istance of the widows in like manner. I wish you the best and may the good Lord bless you abundantly and add more days to your life. Please use the funds well and always extend the good work to others Here is the Contact information of my Attorney below: [...] And tell him that I have WILLED (Euros4 500 000.00) Four million five hundred thousand Euros to you and I have also notified him. I know I don't know you but I have been directed to do this. Thanks and God bless you. NB: I will appreciate your utmost confidentiality in this matter until the task is accomplished as i don't want anything that will jeopardize my last wish. From Please call the lawyer immediately you send message because is always busy to check up the mail . Mrs.Roselyne Caron]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=84785 2009-01-13T00:57:41 -05.00 tellted 1
And Again Thank You
Elizabeth mother of 5yr old Sierra with E]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=83769 2008-12-02T13:52:03 -05.00 lutonm 3 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=83001 2008-10-31T13:33:29 -05.00 wteahcg 2 www.epilepsyresearch.net). Healthcare Communications Group is reaching out to patients who suffer from refractory epilepsy for their opinions.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=82458 2008-10-10T12:21:38 -05.00 efnj_advocacy 1
People who have experienced breakthrough seizures due to formula substitution can offer insight to the true protection this bill offers. Moreover, people with epilepsy who simply cannot afford to risk a breakthrough seizure can come and tell their story of how they need this protection to safely lead a normal, productive life.

We are looking for people who are willing to testify before the legislators in Trenton on October 23rd or 27th and tell their stories to the Health Committees. If you are unable to attend either of these dates, we still urge you to write to legislators. If you are able to help in either way, please contact us so we can help you effectively impact your local lawmakers!

At the end of the day, this bill is about people with epilepsy and their right to have the same formula given to them with every refill at the pharmacy. Because this bill is about the people, and not the pharmacies or drug companies, we truly need people like you to step forward and bring a "face" to this bill. Legislators need to be reminded of the value of this to the epilepsy community, so please help us in our efforts to p***** this bill. You can e-mail me at advocacy@efnj.com for details!

Thank you and we look forward to hearing from you!

Joshua Myers
Legislative Advoacy
The Epilepsy Foundation of New Jersey]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=82389 2008-10-08T14:54:41 -05.00 joelamountain 1 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=7&threadid=81561 2008-09-07T01:30:21 -05.00 tellted 25