2005 Kids Speak Up! Participant Biography
Marie-Claire Rose
Age: 14
Grade: 8
New York, New York
"I want people to know that in spite of my condition, I am a normal teenager, who enjoys hanging out with friends, writing poems and singing."
- Marie-Claire
Marie-Claire Rose is a talented writer who has lived with tonic-clonic seizures since she was 18 months old. In the past decade, Marie-Claire has undergone multiple surgeries and battled a number of subsequent infections post-surgery. On average, Marie-Claire still experiences five to six seizures a week. Like many children living with epilepsy, she struggles to find a treatment that will control her seizures.
Today, Marie-Claire is involved with "Respect," a prevention education theatrical program, in which she re-enacts her battle with epilepsy for high school kids throughout New York City.
Marie-Claire feels it is important to spread awareness about her seizure disorder, and educate her peers about epilepsy in order to eliminate stigma and reduce discrimination.
Back to 2005 Kids Speak Up! Participants by State...
Read more about Marie-Claire: New York Youths Share Epilepsy Message on Capitol Hill (Newswire, March 30, 2005)
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