http://www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1 FuseTalk Standard Edition http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=87106 2009-08-27T04:47:58 -05.00 21tctrade 1 The operator, a magnificent blonde, looked at them in surprise and said, "Why, hello, Teddy, how are you?"
When the couple reached their room, the piqued bride demanded: "Who was that woman?!"
"Take it easy, honey," said the groom, "I'm going to have trouble enough explaining you to her."
ugg shoes replica jersey]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=87056 2009-08-17T15:00:35 -05.00 camels 1
I grew up with epilepsy and at 16 I had brain surgery to remove the part of the brain affected. In the past I have done a ton of volunteering for Epilepsy organizations and raised over $5000 which was donated to the cause.

Currently I am 25 and am in the midst of writing a one-woman play revolving around living with epilepsy. I am planning to do an international tour with this next summer, hitting NYC, Toronto, London, and Edinbrough.

I would like to have your input! If you had the chance to expose to the world what life with epilepsy is really like - what is the main message you would want to get across? What would you say? Anything goes and everything is confidential. I am using what people are willing to tell me as inspiration only.

please email me at epilepsystories@gmail.com or you may reply to this post directly if you would prefer.

Thanks and I look forward to hearing from you!!]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=87018 2009-07-15T00:55:01 -05.00 Tampa_b24 3 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86999 2009-07-01T13:51:04 -05.00 vampiresan 1
Anyway what I am talking about is I feel so depressed and trapped like I can't so anything. Everyone on facebook is saying hwo they are going out to nightclubs and drinking while I stay home doing jack *****. I feel useless like i can't do anything like I'm trapped in my own house which is even worse because I feel I can't even do anything at home. I can't play my fav video games no more and i can't get drunk heck I can't even get hyper now so while everyone around me is having a fun time i'm just sitting there doing nothing.

Please help and give me ideas of what i can do I feel so anti-socialble it is unreal :(]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86939 2009-05-22T16:22:13 -05.00 sandra.thomas3@sky.com 1
LAST WEEK I WENT IN FOR A 5 DAY AMBULTARY EEG. BEFORE GOING IN I WAS TOLD BY MY NEURO TO REDUCE MY MEDS SO WHEN I WENT INTO HOPSITAL I WOULD BE ON NOTHING, THEN TO MY HORROR I ARRIVED AT THE HOSPITAL ONLY TO BE TOLD I HAD NO BED! I WAS NOT IMPRESSED, I EXPLAINED THAT I HAD BEEN PHONE FOR 1HR PRIOR TO LEAVING THE HOSPITAL, BUT COULD NOT GET THROUGH, AND I HAVE A YOUNF BABY. I HAD TO SPEAK TO THE BED MANAGER AND I EXPLAINED TO HIM WHAT AM I MEANT TO DO, I AM ON NO MECIATION? AFTER 2HRS OF WAITING A NEURO CONS SAW ME AND SAID THAT THEY HAVE TO ADMITT ME AS AN EMERGENCY CASE!

SO I GOT HOOKED UP, BY TUESDAY MY ARMS WERE TWITCHING AND MY LEGS, AND THEY WERE JERKING, THEN WEDS NIGHT, THAT'S WHEN THE BIGGY ONES BEGAN, I CAN SAY I HAVN'T MISSED THOSE! THEN I WOULD GET THEM WHEN I WAS EATING (WHICH I USE TO BEFORE I TOOK MEDS), I WAS LIKE A WALKING TIME BOMB, BY THURSDAY NIGHT I REM ASKING A NURSE IF I COULD HAVE SOMTING AS MY STOMACH MUSCLES WERE HURTING SOO MUCH, AND EVERYTIME I WOULD START TO FALL TO SLEEP MY FEET WOULD TWITCH OR MY HANDS AND THIS WOULD LAST UNTILL I HAVE A BIG ONE, THEN I WOULD BE OK FOR FEW HRS THEN IT WOULD START ALL OVER AGAIN.

I WAS PUT BACK ON MY MEDICATION (FULL WACK) ON THURSDAY, AND WAS DISCHARGED STILL HAVING A LOT OF SEIZURES, BUT BY THE WEEKEND I WAS SOOOOO EXHAUSTED, SPACED OUT, STILL HAVING SEIZURES, BUT GUESSING IT WAS THE SIDE EFFECTS OF BEING BACK ON THE MEDICATION!

IT HAS TAKEN ME A WHOLE WEEK TO GET OVER IT, BUT I'VE BEEN HAVING STABBING PAINS IN MY HEAD, THIS ODD SENSATION AT THE BACK ON MY THROAT (NUMBNESS) ON AND OF THROUGHOUT THE DAYS, STILL VERY TRIED, SO WENT TO GP AND HE SAID MY LEVELS MAY BE TO HIGH? I'M ON THE SAME DOSAGE AS I WAS BEFORE SO AM A BIT CONFUSED!

I AM ONLY HAVING PS NOW, BUT BEFORE I CAME OF THE MEDS FOR THE EEG I WAS ONLY HAVING 1 A WEEK, BUT NOW I HAVE AROUND 9 SINCE I HAVE CAME OUT.

I AM DUE TO SEE MY NEURO ON THE 9TH JUNE, WHERE I WILL SEE IF IT IS EPILEPSY, AS PREVIOUSLY I HAVE BEEN TOLD I HAVE NON EPILEPSY AND THAT NO MEDICATION WORKS FOR THIS, BUT IN MY CASE THE MEDS ARE WORKING TO A DEGREE!

I HOPE IT IS EPILEPSY (IN A WAY) SO I CAN PUT SOME CLOSURE ON THIS, TREAT IT AND GET ON WITH MY LIFE, AND HOPEFULLY KEEP MY JOB.

I ONLY BEGAN HAVING SEIZURES 4HRS AFTER GIVING BIRTH TO MY FIRST CHILD LAST APRIL, AND WOULD LIKE SOME POSTIVE NEWS TO FOCUS MOOVING ON WITH MY LIFE.

SORRY IF I HAVE GONE ON, BUT FRIENDS, FAMILY DO NOT UNDERSTAND.

SANDRA]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86930 2009-05-17T02:13:48 -05.00 amanda.UT 4 How can I deal with school? Have any of you guys expirenced this? Tell me it gets better!
I recently got a new doctor. He lowered my zonegran and added the triliptal. I hope he can fix me! He is going to continue adjusting them. This is hopeless. Have any of you guys come back from this? I am very serious about school, but i feel that my brain wants me to fail.

I have been reading on MEDLINE that this is "normal" but not common. I also read about a stem-cell brain surgery. Have any of you researched such things?]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86914 2009-05-10T00:09:49 -05.00 rockclimber 1
Luckily my roommate took care of me on this one so no medical bill or DMV h*****le. But still... my body hurts and my memory is shakey... I have finals in a week. I'm kinda freaking out..

Any suggestions for study tips for memory problems?? I've emailed my professors but.. I just feel like I'm in a losing battle...

Thanks..
Bethany]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86891 2009-04-28T05:27:27 -05.00 aviva83 3 I'm a medical student, and i have epilepsy since I was 12. I have a few questions to ask you:
1. How would you feel about being treated by a doctor who has epilepsy?
2. I am looking for another medical student or doctor with epilepsy. If you know someone please contact me. Thank you.]]> http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86867 2009-04-15T08:35:44 -05.00 wsus2006 2 http://www.epilepsyfoundation.org/efforums/forum/messageview.cfm?catid=63&threadid=86849 2009-04-03T16:50:37 -05.00 Vyse 4
I'm 21 years old, and I'm a full time student. The day this happened, was two days after one of my final exams, and I hadn't been sleeping right or eating well for around a week prior to my exam, which I told my doctor after I took several tests, among them the EEG. The EEG had a small find, which my doctor told me was of epileptic nature, and I remember feeling cold. I was ready to cry, as I couldn't possibly imagine a life with the limitations that comes with this diagnosis, but then my doctor asked about my life lately. I told him everything about how I had worried for my grandmother who had been in the hospital, and the way I had studied for my test. In the end, we agreed that I would not drive for three months, and we'd see if I had another seizure before they took away my lisence.

My problem is that I'm constantly afraid that I'll have another seizure now. I've managed to get into a better sleeping routine, and I try to get enough fluids and food to keep my body going. Since I got out of the hospital, I've had... well, I wouldn't call it a headache, but rather some uncomfortable aching in my head, and it doesn't seem to go away. Is this normal? I know I hit my head during the cramps, but its been two weeks.

Another question I've been wanting an answer to is how often a seizure will occur in a diagnosed patient without medications. My mother told me she went through this exact same thing over twenty years ago, and she's still driving and hasn't had any problems after her first (and hopefully last) seizure. Is there a possibility that I might be the same, even with this dull ache in my head? I'm constantly afraid of another seizure, and it's really hard to live like this. Other than this dull feeling in my head, I feel perfectly fine and I have no trouble sleeping or whatever...

I'd appreciate answers to my questions, as I don't really have anyone else to talk to. My friends don't understand this, and the only response I get from them is "well, that sucks bro"... which isn't much help. Can those of you who have lived with this tell me how you experienced the time after your first seizure?

Best regards,
Patrick

PS!! When registering to this board, I noticed my home country (Norway) wasn't on the list (which I have to say is pretty darn annoying), so I left it as default (usa). I hope that won't be any problem.]]>