Survey Results Signal a Lack of Patient/Doctor Communication

By EpilepsyUSA staff
Posted: March 10, 2006

In November 2005, the online community iVillage conducted a survey questioning women's general knowledge regarding the relationship between epilepsy, antiepileptic drugs, and female health issues. The findings demonstrated women are not getting the information they need about the condition.

According to 440 women taking antiepileptic drugs, epilepsy and the effects it has on pregnancy, sexual function, weight, menopause and bone health are still of "high concern." Results further showed that 82 percent of them were less than "very knowledgeable" about a broad range of female health issues as they related to epilepsy and antiepileptic drugs.

In addition, 69 percent of the women surveyed who were under age 35 were concerned about pregnancy and the use of medications while pregnant. Approximately 61 percent of the women surveyed said they have based pregnancy decisions on their epilepsy treatment, and 40 percent said epilepsy has or will affect their decision to have a child. The major reason for the latter is the fear of taking medication while pregnant.

Blanca Vazquez, M.D., of the New York University School of Medicine and a member of the Epilepsy Foundation's professional advisory board, said these survey results are bothersome.

"The results show a concern about pregnancy, when in fact, with the right treatment and partnership with a physician, it is possible for women with epilepsy to have a healthy pregnancy," Vazquez said.

The surveyed women also reported their discussions with physicians do not include female health issues half the time, despite the fact they wanted more information on sexual function, menopause, weight and bone health.

"Clearly, the results indicate women need more information, so they should be proactive about initiating discussions about these important female health issues and asking questions of their physician," Vazquez said. "Conversely, health care professionals also need to take an active role and ensure women are well versed about the impact epilepsy and antiepileptic drugs can have throughout life."