EpilepsyUSA Issue3-2009

Epilepsy Foundation » Newsroom » EpilepsyUSA » EpilepsyUSA Issue3-2009 » Strength in Numbers 

Strength in Numbers

Over the past two years, the event has raised more than $2 million and engaged more than 13,000 walkers. Money raised from the Walk helps create essential programs for people with epilepsy and aids in the search for a cure. The National Walk for Epilepsy was hosted by the Epilepsy Foundation, with financial support from Ortho-McNeil Neurologics®, Division of Ortho-McNeil-Janssen Pharmaceuticals, Inc.

Walk Chair Greg Grunberg and his family greet participants at the National Walk for Epilepsy. From left, clockwise, wife Elizabeth, Greg, son Jake, Greg?s mother, Sandra, and sons Sammy and Ben.Walk Chair, Greg Grunberg, star of NBC’s hit series Heroes, whose son Jake has epilepsy, joined New York Jets offensive lineman and eight-time Pro Bowler Alan Faneca, Atlanta Falcons running back Jason Snelling, and Cincinnati Bengals cornerback Geoffrey Pope. Each man led a team of supporters to increase funding for epilepsy research and more epilepsy awareness and education programs. Grunberg added his own surprise to the festivities, the launch of a unique and interactive Web site about epilepsy, which he created in conjunction with the Epilepsy Foundation. It’s called Talk About It, and it went live on March 26, 2009. For more information, visit www.talkaboutit.org.

NBC4’s “Man About Town,” Bob Madigan, presided over events, while Harlem Wizards player, Mike Simmel, wowed the crowd with his phenomenal basketball—well—wizardry.

Faneca and Snelling, both diagnosed with epilepsy years ago, led their own Walk teams of family, friends and fans. “We were really proud to be part of the Walk again and bring our families and friends together to support the epilepsy community,” said Faneca. “It provides a great opportunity to let other people with epilepsy know that they should be advocates for themselves, find the highest quality care and move forward with accomplishing their dreams.”

Eric hargis, Epilepsy Foundation president and CEO on the Walk route with wife Kimberly.The inclement weather did little to dampen spirits, diminish initiative or affect projected numbers in any way. Epilepsy Foundation President and CEO Eric Hargis said the turnout was “fantastic,” and expressed little surprise at the resolve of people in the epilepsy community. He said, “People who are coming from the epilepsy community— the rain’s not going to stop them. These are people who are dealing with seizures in their life—they want to be out enjoying their life.” Citing an approximate number of 9,000 participants, Hargis said, “I didn’t think it could be bigger than last year, with the tough economy and the weather, but it was.”

For the first year, Walk participants had the opportunity to view exhibits on topics important to the epilepsy community through the Educate, Empower and Encourage (E3) exhibit held on the National Mall following the Walk. Experts in neurology were stationed throughout the exhibit and addressed topics such as patient and physician communication, treatment options and other participant questions. Educational and inspirational messages and videos could also be viewed from a mini-theater helping people with epilepsy become better informed about living with the condition.

For more 2009 National Walk Pictures click here.