Access to Care & Treatments
Affordable Care Act
Epilepsy Foundation Comments on the ACA
We look forward to the expanded care and benefits that will be provided through the ACA for the millions living with epilepsy, and the Foundation urges HHS to research and clearly address, in policy, the numerous hurdles and restrictions that come with chronic disorders like epilepsy within health care insurance systems.Epilepsy Foundation Comments: Epilepsy Foundation comments to the Secretary of Health and Human Services on essential health benefits under the ACA.
Non-discrimination in Workplace Wellness Plans: On January 25, 2013, the Epilepsy Foundation joined 21 national disability groups on comments to the Department of Labor on proposed rules implementing the Affordable Care Act's (ACA) provision concerning non-discrimination in workplace wellness programs. While the proposed rules included some protections for consumers, the groups called for clear requirements that wellness programs must comply with the Americans with Disabilities Act. The groups recognize the potential of wellness programs to discriminate against individuals with disabilities, particularly with the use of financial incentives and penalties tied to health status that jeopardize employee's access to affordable, quality health care. Read the letter here.Essential Prescription Drug Coverage: On Tuesday, October 2, 2012, the Epilepsy Foundation joined a diverse group of 57 patient advocate organizations to deliver a letter to Secretary of Health and Human Services Kathleen Sebelius, urging the federal government to establish strong prescription drug requirements as part of any regulation that will define essential health benefits unde the Affordable Care Act (ACA). We also ask that the patient protections described in ACA that prevent plans from discriminating against patients, including those with disabilities, be published soon. Read the letter here.
The Epilepsy Foundation, American Academy of Neurology, and the American Epilepsy Society sent a joint disease organization letter to HHS Secretary Sebelius. The organizations urged the Department in its work on a Notice of Proposed Rulemaking (NPRM) on Essential Health Benefits (EHB) for state-based insurance exchanges under the Affordable Care Act, to at minimum adopt a structure similar to that of the Medicare Part D program in offering access to "all or substantially all" medications in six therapeutic classes affecting conditions such as cancer, HIV/AIDS, kidney disease, mental illness and epilepsy. Read the letter here
People with epilepsy must have access to and coverage for the care and treatment that works best for them. Read more about medication substitution issues here.
ACA in the Judiciary
Epilepsy Foundation Advocacy on the ACA & Court Hearings
In the States: Find out more about what is going on with health insurance reform in your state.
www.healthcare.gov – Federal Web page for resources on health reform and health insurance needs
www.consumerreports.org/health/insurance/health-insurance.htm -- Online guide from Consumers Union on major marketplace reforms under the new health reform law
http://healthreform.kff.org/ -- Kaiser Family Foundation Health Reform Source online publication
The following link offers state specific information on health insurance laws, coverage, programs, and consumer issues: http://healthinsuranceinfo.net/getinsured/ -- Georgetown University Guide on Health Insurance