Resources & Help
No matter how much you read or how hard you try, there is only so much you, by yourself, can do to help your child. While every family's situation is different and each child's condition unique, after a while just about all parents recommend the same thing: "Build a support network. Do not try to do it alone!"
The school nurse, your local Epilepsy Foundation, government organizations, an online forum, all are examples of where you can find support, information and other resources. However, most of the time, you need to seek out this support. This is sometimes the hardest thing for people to do, and often the thing they are most glad they did afterward.
One of the greatest rewards of building a support network is that it can also open doors for you to help others. As you reach out, you'll find that you have learned things and found resources that can help other families who are struggling with similar issues. So don't wait. Get involved now!
Tools to Help Manage Care
- Log to help track important information about your child's seizures for your doctor
- Charts and drawings to help you describe your child's seizures to the doctor
- Form to help you plan for and take notes at doctor visits
- Online tool for tracking seizures
- Log to keep track of your child's medication history
- Online site that can help you develop the forms and calendars you need to monitor your child's health care
- Online resource for finding information, tools and ideas that focus on youth with special health care needs.