Discussion Groups
Do you have concerns about how to talk to your child about epilepsy? Are you looking for new ketogenic diet recipes? Would you like to ask other parents what they do when their children want to go swimming with friends? The Epilepsy Foundation's eCommunities can provide you with instant, 24/7 access to families from around the world who are affected by epilepsy. Join threaded discussions and real-time chats with people who understand your day-to-day concerns and issues. There are special online groups for parents, for people concerned about genetic issues and for those who want to discuss advocacy efforts. There is even a special eCommunity for teens.
One mother credits an online community for helping her explain what epilepsy is to her young daughter:
"When we first got the diagnosis of epilepsy, of course, we went to the Web. I got on some forums trying to figure out how to communicate to a small child about this. They explained to me in their adult words what it felt like and then we came up with the word 'buzzy.' So buzzy is a way I use to communicate with her about what's going on. It's a way that doesn't make her feel like she's being set aside, and according to the folks I was talking to 'it's pretty accurate.'"
