Epilepsy Foundation of Connecticut, Inc.

Advocacy

Is Epilepsy Important to You?

Epilepsy Patient Protection Bill:  SB 757

The Epilepsy Foundation of Connecticut has introduced legislation in the Connecticut House and Senate (SB 757).  This bill requires a pharmacist to obtain written, informed consent of the prescribing physician prior to substituting anticonvulsant medications to patients with epilepsy.  To further protect patients, the Epilepsy Foundation of Connecticut also encourages physicians to dispense medication with the "medically necessary" designation affixed to the script and patients to check their medication at the pharmacy every time.

Resources:

For more information, view the Position Statement in PDF format below

Position Statement

Become a member of the Epilepsy Foundation of Connecticut's Public Policy Network

The Epilepsy Foundation of Connecticut believes there is a critical need to develop a strong, organized epilepsy advocacy network in our state. Such a group would help to protect the rights of people with epilepsy and seizure disorders. The group would also work to ensure that their concerns are fully considered by those formulating public policy and legislation.

The main goal of the network is to educate legislators and other officials about the needs of persons with epilepsy, and to insure that those who do make decisions do so with these needs in mind.

Members Needed!

Members of the Public Policy Network will have a voice in shaping the Foundation's public policy goals and will be directly involved in assuring that these goals are met. Network activities may include:

  • Writing letters and making phone calls
  • Encouraging others to join the network
  • Testifying at public hearings
  • Meeting with your legislators
  • Acting as a volunteer "telephone captain" within your district

Requirements to joining the network are minimal:

  • 1-2 hours of time per month
  • An interest in improving the lives of persons with epilepsy
  • The desire to be involved in the legislative process

If you are interested in becoming a member of the Public Policy Network, please contact the Epilepsy Foundation of Connecticut at efct@sbcglobal.net or by calling (800) 899-3745.

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