BOARD OF DIRECTORS

Nancy Duboc,President
Karen Calvin, Vice President
Bobby Olms Shipman, Secretary
Valerie Robbins, Treasurer
Mary Knighton
Christi Ledo
Thomas E. Nanney
Marty Nichols
Mary Ellen Purucker
Colleen Stack
Gina Stingley
 
Emeritus Board
Eugene Strauss
Julia Irene Kauffman
Dr. Rich Davis
Representative Pat Colloton
Thelma Dryer
Tom Gerke
Dr. Ronald Youmans
John Vandewalle

Epilepsy Foundation of Kansas and Western Missouri

About Epilepsy/Seizure Disorder

Epilepsy is a neurological condition that makes people susceptible to seizures.  A seizure is a change in sensation, awareness, or behavior brought about by a brief electrical disturbance in the brain.

People living with epilepsy have the right to expect certain things.  These include:

  1. The right to be treated fairly and with respect.

  2. The right to receive comprehensive, understandable information about epilepsy and its treatment.

  3. The right and responsibility to be active members of their healthcare team.

  4. The right to know and understand all of the treatment options available to them.

  5. Special populations of people with epilepsy, including children, adolescents, the elderly and others have the right to ask about treatment and information appropriate to their specific needs.

  6. The right to understand all of the options and legal protections for accessing healthcare benefit coverage available to them.

  7. The right to know that healthcare providers will hold personal and medical information confidential.

  8. Children with epilepsy may have the right to receive special education and related services at school; parents have the right to advocate for such services.

  9. The right to know that there are federal and state laws that may provide them with protections in the workplace.

  10. The right to access help and support that will assist them in making informed decisions about living with epilepsy.

We Can Help You!

The Epilepsy Foundation of Kansas and Western Missouri provides services to persons with epilepsy/seizure disorder living in Kansas and 37 counties of Western Missouri.


CONTACT US

The Epilepsy Foundation of Kansas and Western Missouri is located at:

6700 Troost  Ste. 316
Kansas City, MO  64131
Phone: (816) 444-2800 or (800) 972-5163

 

Camp Shing
Camp Shing will not be held in 2010, but we look forward to resuming this event in 2011.  For further information, contact cvaughn@efha.org

 


Walk for Epilepsy 2010

Walk-Epilepsyweb2

 

We will be holding our 2010 Walk for Epilepsy at Oak Park Mall on Saturday, March 27th in conjunction with the National Walk for Epilepsy in Washington, D.C.  For information, call 816-444-2800 or email cvaughn@efha.org.

We hope that you can join us in this great event and help raise funds for our local agency as we continue to provide services to persons with epilepsy in our area.