Epilepsy Foundation of Kentuckiana

Personal Experiences

Select the dates to read what people with epilepsy have to say. If you would like to submit your own Personal Experience, you may fill out the form at the bottom of the page.

5/13/2005

Epilepsy and the Army

I was a health young Sergeant in the Army Honor Guard in Washington D.C. on the second day of leave for the first time in a year. I went to bed and woke up confused at Walter Reed Army Medical Center . ..


3/7/2005

A Happy Ending

When I was 6 years old my family was on their way home from vacation when I went into a grand mal seizure in the back seat of the car...


2/13/2005

I was diagnosed with epilepsy following a car accident on July 16, 1984. My first two seizures were grand mal...


2/2/2005

I am thirty six and my older sister has had seizures for over thirty years. Medication has not helped, but I believe to the contrary...


3/25/2004

Petition for Police Training

I am 42 and I have epilepsy and minor brain damage since I was 2 1/2 years old...


2/22/2004

A Frightening Experience

My experience with epileptic seizures began when I was 9 years old. I was lying in bed with my Mom when I realized that something was not quite "right"...


1/19/2004

I was so very happy after reading about someone having seizures as a result of music or other tones...


1/30/2003

My Fantastic Parts

Epilepsy has been my friend and my foe for many years now. It has brought me to my knees at times and at other times has given me the confidence to step up and take a chance that is filled with rewards...


1/10/2003

Hi... I am 19 years old and I am diagnosed with petite mal (absence) seizures. My whole entire life i've been in and out of the hospital...


11/12/2002

Difficult, Yet Rewarding

My son, Jake, has had 5 brain surgeries to remove scar tissue due to a tumor extraction when he was 6...


9/9/2002

At my Wits' End

I have just recently been told that I will have to be evauated for seizures due to periods of passing and blacking out...


Submit your Own Personal Experience

This is your chance to tell us about your experience with epilepsy. We would love to hear from you about almost anything that involves epilepsy. "Experiences" will be posted on this page. If you do not wish for your story to be posted, or wish to remain anonymous, state that in the submission box. Also, let us know if you would like your email address posted with your submission.

Tell us about:

  • People's reactions to your seizures;
  • How your family deals with your epilepsy;
  • How you dealt with a diagnosis of epilepsy;
  • What makes you proud of someone you know with epilepsy;
  • A special person who has enriched your life;
  • A favorite quote that helps you cope; or
  • Anything else!

Don't forget to also refer to the Person to Person Support.

Please fill out the following form and then write your story, thoughts, or favorite quote in the space provided.

 
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Entering your address here gives us a way to contact you. It will not be published unless listed above.