Programs

Here are some brief descriptions of what we do for others.  Feel free to follow the links for detailed descriptions of the programs that interest you.

For current information, please visit our new website!  

Information, Intake and Referral 

Information and referral are provided through qualified staff members to answer general questions regarding epilepsy, developmental disabilities/MR, and traumatic brain injury and their related medical, vocational, educational, employment and psycho-social concerns.

We are committed to providing services to individuals and their families and we will work with you to provide the services and programs to meet your needs.

Please call the Epilepsy Foundation at (800) 724-7930, Monday through Friday, 8:30 AM to 4:30 PM.

If you would like to contact a specific regional office, please use the phone numbers below:

• Rochester (585) 442-4430
• Syracuse (315) 477-9777
• Binghamton (607) 723-4203

Click here to contact us via e-mail.

Let us work with you to determine the best programs to meet your needs and the best way to enroll in them. 

Camp EAGR
 
A week-long residential summer camp in upstate New York for boys and girls, ages 8 to 17, who have epilepsy, regardless of seizure control. Camp EAGR uses the facilities of the YMCA's Camp Weona, located near Warsaw, New York.

Community Education    

Workshops and presentations for schools (teachers and administrators, nurses, classes, bus and ancillary service providers), civic groups, corporations, and agencies are offered on how to identify and respond to seizures and on general issues related to individuals with epilepsy.

Case Management & Service Coordination  

Epilepsy Foundation's staff of social workers and service coordinators offers a variety of case management and Medicaid service coordination programs for individuals and their families. We also offer community habilitation, STRESSpite (a respite program) and a Family Reimbursement Program. Some services require certification/eligibility from the Department of Health, from Medicaid and/or OMRDD;  other services do not.  We encourage anyone interested in these programs to call us for help and guidance. 

Employment Solutions   
 
Employment Solutions provides the training and support needed for individuals with disabilities to sustain competitive employment.  The School-to-Work program provides high school students with the necessary tools needed to make the transition from school to the world of work. Our Supported Employment program works with individuals after their formal schooling has been completed and offers a job club and an employment club.  

Family Services 

Our STRESSpite program offers families respite in order to relieve some of the daily stresses of caring for a child with special needs. Our Family Reimbursement Program offers some financial assistance to families to assist them in meeting on-going needs for a child living at home with epilepsy and/or other developmental disabilities.  Short-term counseling is offered to newly diagnosed individuals and their families.

Family Support Groups   

These services are available to everyone and include support groups for adults with epilepsy, for parents of children with epilepsy, and for parents of children who have sustained a traumatic brain injury.  

Residential Programs     
 
We staff and run a variety of residential facilities for individuals with epilepsy and developmental disabilities who wish to live in a group setting yet need varying degrees of supervision and support. Certification by OMRDD is required.

Scholarship Program   

Rochester attorney and Epilepsy Foundation board member Stephen A. Segar has created a scholarship program that helps high school students with epilepsy go on to college or vocational or technical training. Scholarships are awarded to three students who attend high school within the 22-county territory served by the Epilepsy Foundation.

Traumatic Brain Injury Services   
  
The Epilepsy Foundation has the staff and the expertise to provide a full range of services to individuals with traumatic brain injuries, stroke, and brain damage as a result of chemotherapy and/or radiation therapy for cancer:  service coordination, counseling, an intensive behavioral program, and assessment and training for living skills.