Epilepsy Awareness Day at Disneyland Resort
July 2, 2013
A MAGICAL DAY AT THE ‘HAPPIEST PLACE ON EARTH’ FOR
FAMILIES IMPACTED BY EPILEPSY
Disneyland Resort Hosts Inaugural Epilepsy Awareness Day
Landover, MD, July 2, 2013—In recognition of National Epilepsy Awareness Month, the Epilepsy Foundation and Disneyland Resort are teaming up to create a magical experience for families impacted by epilepsy. The inaugural Epilepsy Awareness Day at Disneyland Resort will take place Thursday, November 7, 2013, as "The Happiest Place on Earth" honors people impacted by a medical condition for the first time.
“We hope Epilepsy Awareness Day at Disneyland Resort draws attention to the fact that approximately one in 26 Americans will develop epilepsy during their lifetime,” said Phil Gattone, president and CEO of the Epilepsy Foundation. “As a parent of a child with epilepsy, I recognize how crucial it is for families to have a chance to release some of the stress and come to a place where kids, regardless of their struggles with epilepsy, can just be kids. We are so excited to partner with 'the happiest place on earth,' and are so thankful to Disneyland Resort for giving us a chance to remind everyone that the Epilepsy Foundation is a place to go for help, support and inspiration.”
Epilepsy Awareness Day at Disneyland Resort is presented in cooperation with the Epilepsy Foundation of Greater Los Angeles, the Epilepsy Foundation of San Diego County, and founding sponsor Dr. Diane Stein. Attendees can purchase tickets on EpilepsyAwarenessDay.org with a designated portion of the ticket price supporting a 501(c)3 charity dedicated to helping people who live with epilepsy. Attendees will also receive a gift bag which includes a special event t-shirt and other materials.
“We are dedicated to increasing access to care, leading advocacy efforts, and providing epilepsy education that improves the lives of families impacted by epilepsy in the Greater Los Angeles area, including Orange County and surrounding counties. Disneyland is in our backyard and we are excited about this opportunity to welcome families from all over the country as they come here to connect with others and celebrate the importance of epilepsy awareness,” said Susan Pietsch-Escueta, executive director of the Epilepsy Foundation of Greater Los Angeles.
“As a neurologist and advocate for epilepsy awareness, I know we will create a new kind of event for epilepsy at Disneyland Resort: one that inspires a nation while bringing together adults, families, and kids of all ages who are touched by epilepsy for a joyful day and years of memories,” said Dr. Diane Stein, founding sponsor of Epilepsy Awareness Day at Disneyland Resort.
Epilepsy is a medical condition characterized by recurring seizures that can affect anyone, of any age, at any time. Unfortunately, current treatments for epilepsy do not work for more than 30 percent of children and adults diagnosed—leaving hundreds of thousands of Americans with no or inadequate control over their daily seizures and at risk of further injury or fatality.
Visit EpilepsyAwarenessDay.org for weekly blog posts and other information about the event. For more on epilepsy, visit www.epilepsy.com, like the Epilepsy Foundation on Facebook, and follow us on Twitter.
About the Epilepsy Foundation
The Epilepsy Foundation, a national non-profit with affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation’s mission is to stop seizures and sudden unexpected death in epilepsy (SUDEP), find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
About Epilepsy Awareness Day at Disneyland Resort
Epilepsy Awareness Day at Disneyland Resort is the vision of Dr. Diane Stein (askdrstein.com), a special friend to the epilepsy community. Dr. Stein is a Board Certified Pediatric Neurologist with special interest in epilepsy, especially complex health conditions. She recently launched the Epilepsy and Autism Project. She is also a passionate epilepsy awareness advocate, having supported epilepsy awareness events for patients, families and doctors in the community, at schools, at retreats and for support groups. Dr. Stein’s goal in both life and practice is to see families living healthier lives, as we all deserve to live better lives. This is what encouraged her to create the first ever Epilepsy Awareness Day at Disneyland Resort.
About the Epilepsy Foundation of Greater Los Angeles
The Epilepsy Foundation of Greater Los Angeles (www.endepilepsy.org) fulfills the nationwide mission of the Epilepsy Foundation by leading the fight to END EPILEPSY through care, advocacy, research and education. Through care we support the training and work of new pediatric neurologist and epilepsy specialists in our region, dietary therapy programs in local hospitals, expedite referral to care, and also offer services and programs that support, connect and empower those who have epilepsy and their loved ones. Advocacy permeates all our efforts as we promote self-advocacy and recruit advocates to work together to make a difference for all people with epilepsy. We are the leading affiliate supporter of research. Finally, education about epilepsy is paramount as we educate the community affected by epilepsy and the general public. As our community gets better specialty care and supportive care, becomes stronger as advocates, supports and participates in research, and has a greater understanding about epilepsy and knowledge of seizure first aid — we will be closer to END EPILEPSY.
About the Epilepsy Foundation of San Diego County
The Epilepsy Foundation of San Diego County (www.epilepsysandiego.org) has been serving the San Diego community since 1954, offering personal counseling, education and a variety of supportive services. All of these services are free and are available to anyone whose life is touched by epilepsy, regardless of the severity of the disability and without regard to race, creed, age, sex or nationality.