National Centers
DIVISION OF SERVICES FOR CHILDREN WITH SPECIAL HEALTH NEEDS
MATERNAL AND CHILD HEALTH BUREAU
NATIONAL CENTERS
Family/Professional Partnerships
National Center for Family/Professional Partnerships works to increase leadership capacity and promote knowledge and measurement of family-centered care through the Family-to-Family Health Information Centers and communities of learners. http://www.familyvoices.org/projects?id=0002
National Center for Cultural Competence works to increase the capacity of health care and mental health care programs to design, implement and evaluate culturally and linguistically competent service delivery systems. http://nccc.georgetown.edu
National Consumer Center for Genetic Resources and Services works to enhance access to quality information, the sharing of quality and vetted resources, peer-to-peer partnership, and organizational development resources in order to achieve parity in access and to increase the quality of care. http://geneticalliance.org/
Early and Continuous Screening
Sickle Cell Disease Newborn Screening Program National Coordinating and Evaluation Center supports grantees in their activities and efforts related to outreach, education and genetic counseling for health care providers, affected individuals across their lifespan, their families, and the general population. www.sicklecelldisease.net
National Center on Health Assessment and Management works to ensure that all infants and young children with hearing loss are identified as early as possible and provided with timely and appropriate audiological, medical, and educational intervention. www.infanthearing.org and www.kidshearing.org
National Newborn Screening and Genetics Resource Center provides State newborn
screening programs with expert consultation and technical assistance, resource development, education and training, and collaboration with stakeholders. http://genes-r-us.uthscsa.edu/
The National Center for Children's Vision and Eye Health advances and promotes children's vision and eye care, and provides leadership and training to public and private entities. www.preventblindness.org/nationalcenter
Health Insurance and Financing
Catalyst Center conducts policy research to identify and evaluate financing innovations, disseminate findings broadly using multiple modalities and provide technical assistance on health care financing policy and practice. www.catalystctr.org
Easy to Use Community Services
National Center on Community Based Services will advance policy and practice solutions that improve the ease of use of community based services by developing a state leadership network, promoting partnerships and recognize leading communities. www.communitybasedservices.org
Regional Genetic and Newborn Screening Service Collaboratives National Coordinating Center serves as the bridge between the regional collaboratives and MCHB, consumer and professional organizations, researchers, public health organizations, and policy makers. http://www.nccrcg.org
Medical Home
National Center on Medical Home Implementation works to ensure that all children, including children with special health care needs, have access to a medical home by enhancing and providing resources, tools, technical assistance and support. www.medicalhomeinfo.org
Health Care Transition
National Health Care Transition Center works to assure that youth with/without special health care needs receive care in a medical home that provides family-centered/youth activated transition preparation, planned transfers from pediatric to adult health care and respectful partnerships. www.gottransition.org
Condition Specific
National Center for Project Access provides national leadership on improving access to comprehensive, coordinated health care and other services for children and youth with epilepsy. www.accessforepilepsy.org
National Coordinating Center for Sickle Cell Disease Treatment Demonstration Program provides technical assistance, collects and analyzes data, and implements activities required by the program's authorizing legislation to grantee networks. http://www.nichq.org/scdtdp/home.php
State Public Health Autism Resource Center is working to increase the capacity of state Title V agencies to enhance services and supports to children, youth and families with Autism Spectrum Disorders. www.amchp.org/SPHARC
Traumatic Brain Injury Technical Assistance Center supports the efforts of the Federal Traumatic Brain Injury Program by providing technical assistance and information to grantees and assisting the States as they seek to establish system change. https://tbitac.norc.org
Data Resources
Data Resource Center for Child and Adolescent Health works to advance the effective use of public data on the health and health-related services for children, youth and families; includes national and state-based data from the National Survey of Children's Health and the National Survey of Children with Special Health Care Needs. www.childhealthdata.org
The Newborn Screening Clearinghouse is a central repository of current educational and family support and services information, materials, resources, research, and data on newborn screening. http://www.nbsclearinghouse.org/
