Talking About Sudden Unexpected Death in Epilepsy (SUDEP)
Wednesday, October 23, 2012 at 3:00 PM EDT
Talking about death, or the possibility of death is hard – even for doctors and nurses. But talking about sudden unexplained death in epilepsy (SUDEP) is an important first step to understanding it. During this webinar the presenters will discuss when and how nurses and doctors should ideally talk about SUDEP with a patient and their family, what people with epilepsy and their families should be asking their doctors. Also included will be a review of what research studies say those living with epilepsy and their families want to hear from doctors about SUDEP. A review the ethics of SUDEP disclosure will also be included. Finally, the presenters will explore the perspective of those who are bereaved by the loss of a loved one to epilepsy and what information they believe should be disclosed. Participants will leave with a basic understanding of SUDEP and the knowledge about how and when to discuss SUDEP appropriately. Plenty of time will be left to answer your questions and the end of the webinar.
What Causes Sudden Unexpected Death in Epilepsy (SUDEP)?
September 12, 2013 at 3:00 PM EDT/2:00 PM CDT
What causes SUDEP? Doctors have some ideas, but they don’t really know yet. There are several research studies trying to answer this question. Some studies are looking at the many possible causes of SUDEP by following people living with epilepsy as well as reviewing the records of those who have died. Others are measuring what happens to your heart and lungs during a seizure. Join Dr. Elizabeth Donner and Dr. Lisa Bateman as they help address this important issue.
Preventing Sudden Unexpected Death in Epilepsy (SUDEP)
On Wednesday, June 12, 2013, Dale Hesdorffer, PhD and Daniel Friedman, MD discussed the most current thinking on ways you can reduce the risk of SUDEP. The archived session will be available soon.
Here are some of our past webinars that have been recorded and archived. You may view or listen to them at any time.
Q & A Webinar : Transitioning Children with Severe Epilepsy from School to Community, from Pediatrician to Adult Care
Strategies for Success Webinars, Parts 1 & 2
Using Technology to Communicate with your Developmentally Disabled Child