Terms of Use

Disclaimer for Warranties and Liabilities

Epilepsy Foundation Legal Notices

COPYRIGHT

Copyright ©1996-2011 Epilepsy Foundation of America, Inc. Landover, MD. All rights reserved. The candle symbol logo ®, the name EPILEPSY FOUNDATION OF AMERICA®, the words "Epilepsy Foundation," and the flame logo (below) and the phrase NATIONAL WALK FOR EPILEPSY and the Walk logo are trademarks of the Epilepsy Foundation of America, and may be used by others only with permission. TAPS® and NATIONAL EPILEPSY LIBRARY® are registered trademarks of the Epilepsy Foundation and may be used by others only with permission.

The information available on this website is the property of the Epilepsy Foundation and is protected by copyright and other intellectual property laws. Information contained herein may be displayed, reformatted, printed or downloaded one time for your personal, noncommercial use only. You may not use any of the information on this website to promote, recommend or endorse any commerical product. You agree not to reproduce, retransmit, distribute, disseminate, sell, publish, broadcast or circulate the information on this website, unless you have received specific written permission from the Epilepsy Foundation. Any copy made of information obtained from this website must include the copyright notice.

DISCLAIMER OF WARRANTIES AND LIABILITY

The information contained on this website is for information purposes only, and you assume full responsibility and risk for the appropriate use of medical information contained herein. Do not make changes in your medication or lifestyle as a result of any information you receive on this Site, without consulting your physician.The Epilepsy Foundation does not intend to provide medical or legal advice, and does not directly or indirectly practice medicine or dispense medical services. Consult your own physician or lawyer for specific advice about your personal situation.

The Clinical Care section of this web site is intended to provide information to physicians and health care professionals about the current treatment and understanding of the epilepsies. Laypeople who read this information are warned against making any changes in their treatment based upon the information here without consulting their personal physician. While the Foundation has made every effort to ensure the accuracy of this information, medical knowledge changes quickly, and changes may have occurred since this information was last reviewed by professionals. Information may also not be complete; the practitioner is therefore urged to continually seek up-to-date information, and may contact the Epilepsy Foundation for assistance in doing so. Some treatments recommended in this section of the website, while in line with generally accepted best medical practice, may not be approved by the U.S. Food and Drug Administration for the described uses. Consult the Physicians' Desk Reference and product manufacturer for approved uses and additional information.

While the Epilepsy Foundation takes pride in providing accurate and up to date information about epilepsy and its consequences, there may be omissions or inaccuracies in such information and on this website. The Epilepsy Foundation, its officers, directors, employees or agents, does not warrant or guarantee the accuracy or completeness of its information or services, and specifically disclaims any liability therefore.

LINKS

Periodically throughout this site, you will notice links to other sources of epilepsy-related information and services. The Epilepsy Foundation does not recommend, endorse or guarantee the adequacy or reliability of those other sources of information and services.

NOTICE OF COPYRIGHT INFRINGEMENT

The following agent has been designated to receive notification of claimed infringement of copyright regarding information contained on this website:

Phil Gattone, President & CEO
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
(301) 459-3700

Privacy Statement

The Epilepsy Foundation wants to protect the privacy of visitors to our Web site. The information users voluntarily share with us will be used to improve the quality of our services, and to promote public understanding and education about the impact of epilepsy on people's lives. The Foundation has adopted the following privacy policy governing its Web site. The privacy policy is continuously being revised and we welcome your thoughts which you may send via messages to ContactUs@efa.org. Users who have provided us contact information will be informed upon changes to our privacy policy.

What personally identifiable information does the Foundation collect from me?

The Epilepsy Foundation respects the personal privacy of the visitors to our Web site. We believe keeping your information private and in a secure environment is very important. When you browse the informational portion of our Web site, you do so anonymously. Personal information is not collected, unless you voluntarily provide us with that information as described below. To participate in our eCommunities, you must provide an e-mail address/user name and password. This allows us to create a ‘closed’ community, so information you provide as a participant of the eCommunities will be protected from standard search engines. We will not share with third parties your name, street address, telephone number or e-mail address without your consent. We do not sell or rent your personal information. We will not deliver target advertisements from others to you. We provide no mechanism for an advertiser to reach you, unless you sign up directly with an advertiser or outside vendor.

In order for the epilepsyfoundation.org Web site to improve its performance and design and to provide you with better services, we track the usage of our Web site through information taken from our server log files. The type of information collected is basic statistical data, such as channels and sections viewed, time of access and amount of time, search phrases used to reach the Foundation's site, and browser type. This information is anonymous, and is collected in the aggregate; it will not personally identify you in any way, and we cannot get back to you, the user, through this data. We use this aggregated information in order to learn what are the most popular sections of our site, for general promotional purposes and for making decisions about the future strategy and direction of the Web site. The aggregated information may also be shared with third parties to promote Epilepsy Foundation services and the Web site, or to add to general knowledge concerning the public's need for epilepsy education and treatment services.

What happens when I sign up with the Foundation online?

You voluntarily provide us with personal information when you choose to become a member, make a donation, join our Speak Up Speak Out grassroots network or Newsroom, join one of our e-Communities, subscribe to one of our e-newsletters, participate in a research campaign and when you purchase a product from our catalog. The information we collect through these transactions includes such things as your name, address, phone number, email address and, when you make a financial transaction, your credit card number. This allows the Foundation to send you messages and to share information with you that we think you may find useful. We study our users' demographics, interests and behavior based on this information voluntarily provided for a variety of reasons, including to have better information on the needs of people with epilepsy and how to improve our services.

Donor records are kept in the strictest of confidence. At times, we select and offer portions of our mailing list to carefully screened organizations that we believe may interest you. If you do not want to receive this information, or if you would like to have your name removed from future communications, please let us know by sending an email to ContactUs@efa.org.

What is a cookie and how does the Foundation use them?

When you voluntarily join one of the Foundation's e-communities, make a donation, or purchase an item from the Foundation, a cookie is placed on your computer hard drive. A cookie is a small amount of data stored as a text file. The data contains a unique identification number assigned by our system that recognizes your browser when you come to our computer, but does not recognize you as an individual. These cookies remain on your system and are automatically retrieved when you return to our Web site at a later time. We use cookies to remind us of who you are in order to send you information you have requested and deliver to you a more personalized service. The cookie also allows us to automatically log you in to certain sections of our site without having you re-enter user name information for each return visit.

You may choose to set the Internet properties of your computer so that you are alerted each time a cookie is being stored on your computer or you may choose to prohibit the collection of cookies all together. In addition, you may delete cookies that have already been stored on your hard drive. If you do prohibit the collection of cookies, understand that you will need to re-enter your email and other information each time you go to the portion of our Web site which requires the input of identifying information.

How do I change my personal information or stop receiving online information from the Foundation?

If you need to change your personal information, you may do so yourself at any time by simply going to the part of the site where you signed up for the e-newsletter, e-community, or purchased items by entering the corrected information. If you decide that you no longer want to be a part of an e-community, or receive marketing or other information from the Foundation sent to your online email address, you may unsubscribe by updating your profile in the e-communities area to deselect subscriptions to the e-newsletters or the line that asks for additional information. If you are a member of the Foundation and would like to update your records, please contact the Membership department at the Foundation by telephone or letter.

How does the Foundation protect my confidential information?

If you have shared with us your credit card number in order to purchase an item from our marketplace or to make a donation to the Foundation, your credit card number is stored on a secure server and is protected by firewalls. The Foundation uses computer encrypted technology to protect your information and this information is kept confidential. The Foundation sometimes contracts with outside vendors and business partners to fulfill customer services and hosting services on the Web site. When we do so, we enter into confidentiality and non-disclosure agreements with all vendors stating that they will hold information received through our site confidential and will not sell or share user information to any third party or use the information for their own personal use. A very limited number of the staff of the Epilepsy Foundation has secure access to data. We hold our employees accountable for our privacy principles and each employee is personally responsible for maintaining customer confidence in the company.

For more information on the privacy policy related to purchasing from our online store, click here:
http://shop.epilepsyfoundation.org/store/help/privacy.aspx

For more information on the privacy policy related to our eCommunities, click here:
http://epilepsyfoundation.ning.com/main/authorization/privacyPolicy?previousUrl=http%3A%2F%2Fepilepsyfoundation.ning.com%2F

The Foundation may disclose information to law enforcement and other governmental or court authorities in the rare case when we are required to do so or if there is reason to believe that disclosure is necessary to identify, contact or bring legal action against someone who may be causing injury to or interference with (either intentionally or unintentionally) the Epilepsy Foundation's rights or property, other Foundation's users or anyone else that could be harmed by such activities.

How are children who use the Foundation's Web site protected?

The Foundation is concerned about the safety of minors who use the Internet. We want you and your family to feel secure when visiting our site. Children under 13:
Do not send us any information about yourself or your family if you are under age 13 - including information like your name, address or email address - unless you have asked your parents for permission to do so. The Foundation will not knowingly request personal identifying information from children under the age of 13 without parental consent. If we learn that we have personal information from a child under 13, we will delete that information from our database as soon as possible.

Linked Internet Sites

The Foundation hyperlinks to numerous sites that we believe are of interest to people with epilepsy. We do not control the privacy policies of business partners, advertisers, sponsors or other sites to which we may provide hyperlinks, and the privacy policies of any of these third parties may differ from ours. When you hyperlink to the Web site of one of our business partners, advertisers, sponsors, or other sites, you are subject to their privacy policies and not those of the Foundation. The Epilepsy Foundation is not responsible for such provisions and expressly disclaims any and all liability related to the privacy policy or practices of such other Web sites.

Where should I go if I have a question or a complaint about the Foundation's privacy policy and practices?

If you have any additional questions about your privacy on the Foundation's Web site, or if you believe that your privacy may have been violated by the Foundation, please feel free to contact the Foundation at ContactUs@efa.org.